CDTRP 2023 Patient, Family and Donor Research Forum – Program now available!
The Canadian Donation and Transplantation Research Program (CDTRP) in cooperation with the Health Canada-initiated Organ Donation and Transplantation Collaborative and the Canadian Society for Transplantation, is pleased to announce the program for the 4th edition of the Patient, Family & Donor Research Forum on June 8-9, 2023.
This virtual forum will be aimed at enhancing patient engagement during project development and research execution, as well as promoting equity, diversity, and inclusion in patient engagement and research training. We will also be exploring the emerging best practices for integrating Patient, Family and Donor (PFD) partners in knowledge mobilization, with the goal of building skills and resources that benefit both patients and researchers.
Learning outcomes are:
- Building skills and resources to enhance the donation and transplantation research community’s capacity for patient engagement during project development and research execution;
- Developing and sharing practical approaches to enhance equity, diversity and inclusion in patient engagement and research training within the Canadian donation and transplantation network;
- Understanding emerging best practices for integrating PFDs in knowledge mobilization and sharing the knowledge developed with the broader research community.
Structure of the program
The two-day virtual Forum is divided into 4 blocks that focus on integrating patients, families, and donors into various stages of research, knowledge mobilization, and research priority setting through presentations, panel discussions and workshops. The blocks are as follows:
- Integrating patients, families, and donors during research question and funding development
- Integrating patient, family, and donor engagement in research execution
- Patients, families, and donors in knowledge mobilization
- Patient, Family and Donor Research Priority Setting
The rich program has been developped by a diverse group of individuals, including patient partners, caregivers, investigators, trainees, and Organ Donation Organization representatives.
The 2023 Co-Chairs:
- Leonard Hodder | Patient Partner (Themes 1 & 2)
- Dr. Ruth Sapir-Pichhadze | Canadian Society of Transplantation Representative (Theme 4)
The 2023 Planning Committee:
- Sarah Douglas | Health Canada: Organ Donation and Transplantation Collaborative Representative
- Jennifer Kingdon | Patient Partner (Theme 5)
- Hannah Murray |National Institute for Health and Care Research (UK) Representative
- Amy Thachil | Trainee (Theme 4)
- Lindsay Thompson | Patient Partner (Themes 3 & 4)
- Chloe Wong-Mersereau | Trainee (Theme 1)
We thank AstraZeneca for sponsoring this event.
Meet our Co-Chairs!
We are pleased to announce that this year’s Co-Chairs are Leonard Hodder, a two-time non-directed living donor and Dr. Ruth Sapir-Pichhadze, nephrologist and investigator at McGill University Health Centre and an Assistant Professor, Division of Nephrology and Multi-Organ Transplant Program, at McGill University.
We have asked a few questions to Leonard and Ruth about their implications in the Forum, that you can read below
We wish to thank the following institutions, foundations and associations for their support in promoting the 2023 CDTRP Patient, Family and Donor Research Forum (in alphabetical order):
- Alberta Transplant Institute
- BC Transplant
- Canadian Blood Services
- Canadian Transplant Association
- Can-SOLVE CKD Network
- Canadian Liver Foundation
- Canadian Society of Transplantation
- Kidney Foundation of Canada
- Newfoundland and Labrador SPOR SUPPORT Unit
- Saskatchewan Centre for Patient-Oriented Research (SCPOR)
- Stem Cell Club
- Swab the World
- Transplant Ambassador Program
- Transplant Families
- Transplant Manitoba – Gift of Life
- Transplant Research Foundation of British Columbia
- University Health Network – Ajmera Transplant Centre
- University Health Network – Centre for Living Organ Donation