Patient, Family and Donor Research and Policy Priorities: A National Approach to Prioritizing Emerging Issues in COVID-19 in Transplantation | 1.5 hour Workshop
Transplant recipients remain at higher risk of severe COVID-19 outcomes. For transplant recipients surviving COVID-19 and/or experiencing the extreme stress associated with the pandemic, little is known about effective strategies to support recovery of quality of life. Studying these questions in Canada is challenging, given the pace of variant evolution and drug development, as well as regional variations in therapeutic practices and public health policies. How quickly the pandemic changes has made it difficult to deliver research results in time to still be relevant for clinical and policy decision making.
To address this challenge, CDTRP has established a national, multi-disciplinary team and an agile, collaborative framework to address emerging research questions. With 12 participating Canadian transplant programs, we are creating a prospective registry of over 2500 transplant patients and their caregivers. A national data platform will capture outcomes from medical chart reviews, Patient-Reported Outcome Measures, and economic questionnaires to enable our research team to answer emerging questions on (1) therapeutic effectiveness and safety; (2) mental health, long-term well-being, and family impact; and (3) therapeutic cost-effectiveness and economic burden on the health care system and on families.
This workshop is open to everyone in the national transplant community, including patients and family, health professionals, partner organizations, industry, and researchers from all disciplines. Together, we will develop consensus on the most pressing knowledge gaps related to therapeutics, mental health and well-being, and the economics of COVID-19 in transplant patients and families and plan the studies to address them.
- Identify the priority questions that the community would like to be answered through the TREAT-COVID research project
- Gain every participant’s perspective, including adult and pediatric transplant recipients, their families, caregivers and researchers
- Share progress on developing the project that we’ve made over the last year
- Align the research goals of TREAT-COVID with the priorities of the community