CDTRP 2023 Patient, Family and Donor Research Forum – Meet our Co-Chair: Dr. Ruth Sapir-Pichhadze
The Canadian Donation and Transplantation Research Program is excited to announce the 4th edition of the Patient, Family and Donor Research Forum in cooperation with the Organ Donation and Transplantation Collaborative (ODTC) and the Canadian Society of Transplantation (CST).
This forum will be aimed at enhancing patient engagement during project development and research execution, as well as promoting equity, diversity, and inclusion in patient engagement and research training. We will also be exploring the emerging best practices for integrating Patient, Family and Donor (PFD) partners in knowledge mobilization, with the goal of building skills and resources that benefit both patients and researchers.
The forum will be the perfect opportunity to network and collaborate with colleagues and experts in the field, and we encourage everyone to participate.
We are pleased to announce that this year’s Co-Chairs are Leonard Hodder, a two-time non-directed living donor and Dr. Ruth Sapir-Pichhadze, nephrologist and investigator at McGill University Health Centre and an Assistant Professor, Division of Nephrology and Multi-Organ Transplant Program, at McGill University.
We have asked a few questions to Ruth about her implication in the Forum, that you can read below. And read Leonard’s answers here.
Why did you agree to take on the CDTRP Patient, Family and Donor Research Forum Co-Chair role?
Co-Chairing the PFD Research Forum is an opportunity to contribute to the education of investigators, trainees, and PFD partners on emerging best practices around the inclusion of PFDs in research, knowledge translation, and implementation.
Why is the CDTRP Patient, Family and Donor Research Forum important for you?
As a Clinician Scientist, I strive to conduct research that promotes the wellbeing of transplant candidates and recipients. The PFD Research Forum is an opportunity to advance collaborations between researchers and patient, family, donor partners, present research in donation and transplantation to key stakeholders.
What would you say to the public to convince them to attend the Forum?
This year’s PFD Research Forum brings together investigators, trainees and, of course, patient, family, and donor partners who will discuss how to engage patients in the research process. Cognizant of principles of equity, diversity and inclusion, we will discuss meaningful PFD engagement from study conception and design, through research execution, to knowledge mobilization and implementation.
We thank AstraZeneca for sponsoring this event.
We wish to thank the following institutions, foundations and associations for their support in promoting the 2023 CDTRP Patient, Family and Donor Research Forum (in alphabetical order):
- Alberta Transplant Institute
- BC Transplant
- Canadian Blood Services
- Canadian Transplant Association
- Can-SOLVE CKD Network
- Canadian Liver Foundation
- Canadian Society of Transplantation
- Kidney Foundation of Canada
- Newfoundland and Labrador SPOR SUPPORT Unit
- Saskatchewan Centre for Patient-Oriented Research (SCPOR)
- Stem Cell Club
- Swab the World
- Transplant Ambassador Program
- Transplant Families
- Transplant Manitoba – Gift of Life
- Transplant Research Foundation of British Columbia
- University Health Network – Ajmera Transplant Centre
- University Health Network – Centre for Living Organ Donation