La Semaine du don vivant 2020 – Sessions en vedette : Les populations défavorisées
Ne manquez pas les sessions de chercheurs et patients-partenaires du PRDTC lors de la Semaine du don vivant 2020 : Improving Access to Liver Transplantation in Diverse Communities et The Future of Transplantation and Living donation.
Pour plus d’informations sur la Semaine du don de vie 2020, cliquez ici.
A.C.T.I.O.N.: Improving access and equity in Living Donor Kidney Transplantation in ACB & South Asian Communities
Lundi 14 septembre à 11h10 HE
La semaine du don vivant commence par l’accès et l’équité en matière de don vivant et de transplantation rénale. S’appuyant sur les travaux du projet A.C.T.I.O.N., dirigé par le Dr Istvan Mucsi, de l’UHN et le Dr Jag Gill, du Providence Health Care, ce panel discutera des obstacles à la transplantation de reins de donneurs vivants (TRDV) au Canada et dans le monde.
L’accès à la TRDV est considérablement réduit parmi les groupes ethno-raciaux minoritaires au Canada et dans d’autres parties du monde. À ce jour, aucune intervention visant à remédier à ces inégalités n’a été menée au Canada. L’A.C.T.I.O.N. vise à identifier les obstacles à la TRDV pour les communautés africaines, caribéennes et noires en Ontario, et les communautés sud-asiatiques en Colombie-Britannique.
Le premier séminaire de la semaine est divisé en deux parties. La première partie, présidée par le Dr Istvan Mucsi, examinera les perspectives internationales sur l’accès et l’équité en matière de TRDV.
La deuxième partie, présidée par la Dre Sunita Singh, directrice médicale du Living Kidney Donor Program de l’UHN, discutera de l’amélioration de l’accès et de l’équité en matière de TRDV dans le contexte canadien.
Présentateur en vedette : Dr Istvan Musci
Istvan Mucsi, MD, PhD, est un clinicien chercheur financé par les IRSC, néphrologue spécialisé dans les greffes au sein du programme de transplantation multi-organes et de la division de néphrologie du réseau de santé universitaire de Toronto. Il est professeur agrégé de médecine à l’Université de Toronto. Le Dr Mucsi est un « conseiller expert » du Programme canadien de recherche sur le don et la transplantation d’organes.
Il a obtenu son diplôme de médecine (1988) et sa certification en médecine interne (1993) à Budapest, en Hongrie, et a suivi une formation en néphrologie à l’université de Toronto (1994-1997). Au départ, il travaillait comme néphrologue généraliste, mais il s’est ensuite installé à Montréal pour travailler comme néphrologue spécialisé dans les transplantations à l’université McGill. Il a déménagé à Toronto en avril 2014.
Ses recherches actuelles portent sur la compréhension et la réduction des barrières ethnoculturelles et des disparités dans l’accès à la transplantation de reins et à la transplantation de reins de donneurs vivants. Il a collaboré avec de nombreux organismes communautaires et organisations religieuses pour développer une éducation sur la transplantation rénale culturellement et religieusement compétente pour de nombreuses communautés ethnoculturelles en Ontario.
Il a adapté un programme d’éducation des patients, appelé Explore Transplant, pour l’utiliser en Ontario. Ce programme est un outil éducatif clé dans le cadre de l’initiative provinciale Enabling Access to Kidney Transplant-Living Kidney Donation (ENAKT-LKD) gérée par le Réseau rénal de l’Ontario et le Réseau Trillium pour le don de vie. Le Dr Mucsi a codirigé le pilier éducatif de cette initiative.
Il s’intéresse également beaucoup aux déterminants psychosociaux de la santé, aux troubles du sommeil, aux études sur la qualité de vie et aux résultats rapportés par les patients. Le Dr Mucsi testera l’efficacité de la mesure systématique des résultats rapportés par les patients dans les soins cliniques quotidiens des patients atteints de maladies rénales chroniques et des receveurs de greffes d’organes solides, afin d’améliorer les résultats cliniques et la qualité de vie.
Il a publié plus de 140 articles revus par des pairs, son indice H est de 46.
Enregistrez-vous gratuitement à la session ici : ACTION: Improving access and equity in Living Donor Kidney Transplantation
Living Donor Kidney Transplantation & Indigenous Communities (AM5)
Vendredi 18 septembre à 9h00 HE
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Présentatrice en vedette: Mary Beaucage
Originaire de la Première nation de Nipissing, près de North Bay (Ontario), Mary Beaucage est Anishnaabekwe. Elle vit avec une maladie rénale chronique et a reçu une greffe don vivant de son cousin, qui vit dans le nord du Manitoba. Mary a reçu le don de son cousin au Toronto General Hospital (TGH) en 2015. Depuis sa transplantation, Mary s’est engagée activement auprès des patients. Elle apporte une richesse de connaissances, d’enthousiasme et de passion à son travail d’éducation et de défense des droits en matière de santé autochtone, de recherche sur la MCC et de sensibilisation au don et à la transplantation d’organes.
Mary est impliquée dans Can-SOLVE CKD depuis 2016. Elle a récemment accepté le rôle de coprésidente du Indigenous Peoples Engagement Research Council (IPERC) et a contribué de façon importante aux efforts de l’IPERC pour s’assurer que les connaissances et les perspectives autochtones sont intégrées dans tous les aspects du réseau Can-SOLVE CKD. Elle siège actuellement au groupe de travail Wabishki Bizkiko Skaanj Learning Pathway, qui améliore les connaissances des chercheurs et les sensibilise aux préjugés raciaux, aux voix et aux histoires autochtones, à l’impact de la colonisation sur la santé autochtone et aux pratiques de recherche culturellement sûres.
En plus de ses rôles au sein du CIRR, Mary est engagée dans un large éventail d’activités au sein du réseau Can-SOLVE CKD. Elle est coprésidente du Patient Governance Circle (PGC) et siège à plusieurs comités. Mary est également une patiente partenaire de quatre équipes de projet de recherche Can-SOLVE CKD. Mary joue un rôle de premier plan au sein des centres de soins palliatifs de l’Ontario Health, notamment l’Ontario Renal Network (ORN), et participe également au Programme de recherche en don et transplantation du Canada (PRDTC), à la Fondation du rein, à l’Organ Donation and Transplantation Collaborative (ODTC) et à l’Internationals Society of Nephrology (ISN) dans les domaines de l’équité, du partenariat avec les patients et de la sensibilisation du public.
Mary est actuellement coordinatrice provinciale du Transplant Ambassador Program (TAP), un projet de recherche qui réunit des patients atteints d’IRC, des receveurs de reins et des donneurs vivants afin de partager des histoires et d’améliorer l’éducation concernant le don vivant de reins. Le TAP est l’un des 18 projets de recherche du réseau Can-SOLVE CKD, ainsi qu’un pilier de l’ENAKT-LKD (Enabling Access to Kidney Transplant-Living Kidney Donation), une initiative provinciale gérée par le RRO et le Trillium Gift of Life Network (TGLN).
Elle a été conférencière principale, a participé à des panels et a fait présenter son affiche sur « Patient Engagement in Knowledge Translation (KT) » lors de conférences nationales et internationales sur la néphrologie. Mary a trouvé la force de parler aux autres et estime qu’il est essentiel de partager les expériences vécues grâce à sa culture de récit indigène, afin de donner à tous les intervenants une perspective claire du parcours du patient.
Enregistrez-vous gratuitement à la session ici : Living Donor Kidney Transplantation & Indigenous Communities
ity of Alberta and has received training in patient-oriented research through the University of Calgary’s PACER (Patient and Community Engagement Research) Program. He is the Patient, Family, and Donor Partnerships & Education Manager with the Canadian Donation and Transplantation Research Program. In this role, Manuel builds relationships patient partners with investigators and strengthens capacity among CDTRP patient partners.
Anders Billström 
Gareth Wiltshire
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Sherrie Logan 
born and raised in Edmonton, AB. With a degree in Music Performance (saxophone performance) and Education, Lindsey has taught for over a decade in the Edmonton Public School system. When she is not teaching, she is very involved in the music community, performing in the Edmonton Winds, conducting her own community ensemble (The Beer League Band) and on numerous musical boards across the province. For the past 5 years, Lindsey has had to take a break from teaching after having her amazing son, George. Maternity leave did not goes as expected as George was diagnosed with Dilated Cardiomyopathy at 5 months old and required 2 heart transplants before the age of 4. During this time, Lindsey has also began to dedicate her time building and expanding her charity: Big Gifts for Little Lives, where they raise money to fund Pediatric Heart Transplant research at the Stollery.
Dr. Caigan Du is a scientist at the Vancouver Coastal Health Research Institute and an assistant professor in the Department of Urologic Sciences at the University of British Columbia. He received a Ph.D. degree in Biochemistry in UK and postdoctoral training in Immunology in USA. He is interested in the pathogenesis of kidney ischemia-reperfusion injury and transplant rejection, and molecular control of urinary malignancies. He has been studying the impact of kidney donor-derived factors on renal allograft rejection, and the molecular pathways of kidney injury and regeneration in experimental models. He is also interested in developing medical solution including drugs made from natural compounds for all kinds of health problems, including immune disorders, organ preservation, kidney failure and urinary cancer. He is the PI of many grant supports from the Kidney Foundation of Canada and the Canadian Institutes of Health Research.
Heather Badenoch is a non-directed living liver donor and communications strategist. As the president of Village PR, she provides strategic communications direction and training to not-for-profit clients in community and health. An active transplant volunteer, Heather helps transplant candidates find living donors by running their public appeals, small and large, pro-bono. She also mentors potential living donors on the path to living donation. Heather is a volunteer with the UHN Centre for Living Organ Donation and the Canadian Donation and Transplant Research Program. She and her spouse adopt rescue dogs and volunteer together with Community Veterinary Outreach, a group providing free veterinary care to the pets of people who are homeless.
Sean Dicks is a clinical psychologist who has 20 years’ experience supporting both families of organ donors and transplant recipients. While it is rare for him to have contact with a donor family and recipient linked to the same organ donation-transplantation event, his contact with families who have lived experience with organ donation on the one hand, and patients who have received transplants on the other hand has provided opportunities to explore how their journeys become linked when they attempt to make sense of and find meaning in their respective crises.
Terri Hansen-Gardiner is a Cree speaking Metis woman from Northern Saskatchewan as well as a 10 year Breast Cancer Survivor. Her tireless spirit and dedication to her community is undeniable. Terri is a cancer survivor who travels around the province to provide assistance, information, and support to Indigenous patients who are trying to access and navigate the cancer care system.
Dr. Golnaz Karoubi is Assistant Scientist at the Toronto General HospitalResearch Institute and principal investigator in the Latner Thoracic Research Labs. She currently holds an Assistant Professor appointment in the department of Laboratory Medicine and Pathobiology and a cross-appointment in the department of Mechanical and Industrial Engineering at the University of Toronto. Dr. Karoubi received her PhD in Applied Science and Engineering at the University of Toronto and joined the Lung Regenerative Medicine Program in the Department of Clinical Research in Berne University, Switzerland for a post-doctoral research fellowship. She stayed on as a Group Leader in 2008 to direct the basic and transitional science as related to Cancer Stem Cell and Lung Regenerative Medicine in the Department of Biomedical Research at the University of Berne until 2012. In early 2012, she joined the team of Dr. Tom Waddell at the Toronto General Hospital Research Institute as a Senior Scientific Associate and was appointed to Assistant Scientist at the Toronto General Hospital Research Institute (University Health Network) in November 2019 and to Assistant Professor in the Department of Laboratory Medicine and Pathobiology in July 2020.
Dr. Haykal graduated from the University of Ottawa Faculty of Medicine in2007 as class valedictorian and silver medalist, and subsequently completed her residency training in Plastic and Reconstructive Surgery at the University of Toronto in 2016. During her residency, she completed a four-year Doctorate of Philosophy (PhD) in tissue engineering, regenerative medicine and immunology with a focus on tracheal reconstruction. She obtained numerous grants and awards including a CIHR Vanier Scholarship. Dr. Haykal then pursued fellowship training in microsurgical reconstruction at the Albany Medical Centre in New York. Dr. Haykal joined the University Health Network and the Toronto General Hospital in 2018. Her clinical focus is on complex oncological reconstruction and microsurgical reconstruction of the breast, head and neck and extremity. She started a lymphedema program in 2019 where she offers microsurgical techniques for the treatment of lymphedema.
Dr. Ahmed is a Professor in the Cumming School of Medicine at the University of Calgary. The recipient of the 2022 Hypertension Canada Senior Investigator Award, she is a nephrologist and clinician-scientist with a focus on sex and gender differences in human cardiovascular/kidney physiology and clinical outcomes. Dr. Ahmed is the Vice Chair (Research) for the Department of Medicine, Lead of the Libin Institute Women’s Cardiovascular Health Research Initiative at the University of Calgary and Lead of the Alberta Strategy for Patient Oriented Research Capacity Development Platform. Dr. Ahmed is an Advisory Board member for the Canadian Institutes of Health Research Institute of Gender and Health, a member of the Canadian Medical Association Journal Governing Council and the President-Elect for the Organization for the Study of Sex Differences.
r. Christopher Nguan is an Associate Professor at the University of British Columbia in the Department of Urological Sciences, Surgical Head of Kidney Transplantation at Vancouver General Hospital and the Director of the Surgical Technologies Experimental Laboratory & Advanced Robotics (STELLAR) facility at Vancouver General Hospital.
r Caroline Lamarche is a clinician scientist and transplant nephrologist at Maisonneuve-Rosemont Hospital. She is an assistant clinical professor at the Université de Montréal. After her nephrology training at the Université de Montréal (2015), she completed a Master degree on the use of adoptive immunotherapy to treat/prevent BK nephropathy in kidney transplant recipients. She then pursued a post-doctoral fellowship with Dr. Megan Levings at the University of British Columbia on the use of chimeric antigen receptor (CAR) regulatory T cells (Tregs) to induce transplant tolerance. Her lab is working on the development of adoptive immunotherapy in nephrology and understanding Treg dysfunction.
Dr. Tandon is an Associate Professor of Medicine, Co-Director of the Cirrhosis Care Clinic, Transplant Hepatologist and lead of the Cirrhosis Care Alberta quality improvement program. She obtained her training at the University of Alberta, the Hospital Clinic in Barcelona and Yale University. Her clinical practice and research are focused on cirrhosis with research interests including cirrhosis related complications, malnutrition, frailty, exercise therapy, palliative care, integrative health approaches such as meditation and knowledge translation. It is her career goal to provide wholistic, interdisciplinary, evidence based, patient-centered care through education, empowerment, engagement and team-work.
Emily is a PhD student at the University of Alberta, where she completed her Master of Science (MSc) degree in medicine. With a passion for patient-oriented research and a commitment to improving health outcomes, Emily’s doctoral project focuses on EMPOWER, a 12-week online mind-body wellness program designed for adults living with chronic health conditions.
Dr Basil S. Nasir, M.B.B.Ch
Dr. Victor Ferreira is an Assistant Scientist in the Ajmera Transplant Centre at the University Health Network (UHN) and the Toronto General Hospital Research Institute (TGHRI). He is also an Assistant Professor at the University of Toronto in the Department of Laboratory Medicine and Pathobiology (LMP). He completed his PhD in Medical Sciences – Infection and Immunity Specialization at McMaster University in 2014 and post-doctoral training at UHN. His research program is focused on three pillars: I) using systems vaccinology to reveal insights into vaccine responses in immunocompromised individuals like transplant recipients; II) characterizing the impact of chronic viral infection on host immune responses; and III) developing novel methods for eliminating latent viruses in human organs. His work has been cited >2,500 times and is published in journals including the New England Journal of Medicine, Nature Immunology, the Lancet Infectious Diseases, Clinical Infectious Diseases, the American Journal of Transplantation and Journal of Infectious Diseases.
Chemical Engineering as an Assistant Professor in August 2014. She is a biochemical engineer with expertise in bioprocess development, high‑throughput screening and stem cell culture optimization. Her research aims to develop bioprocesses to produce and transplant therapeutic cells to treat diabetes and cardiovascular disease. She notably developed new methods to encapsulate pancreatic islets, as well as vascular biomaterials surface modification strategies which are now applied by other researchers around the world. Her emerging leadership in bioengineering was recognized through the 2014 Martin Sinacore Outstanding Young Investigator Award from Engineering Conferences International & Biogen Idec, as well as the “Étoiles effervescence” award from Montreal InVivo.
