Soutien de la part du PRDTC*
Le PRDTC peut apporter un soutien pour aider à couvrir les frais de l’analyse de questions éthiques, économiques, légales et sociales faisant partie de votre étude principale. Cette analyse vise à augmenter l’étendue de votre étude primaire et permettre une meilleure compréhension de l’impact social et économique de la recherche. Ce fonds peut être utilisé pour soutenir vos collaborateurs existants ou nous pouvons vous aider à trouver des collaborateurs potentiels.
Les études cliniques peuvent demander à utiliser le Comité de surveillance de la sécurité des données (CSSD) du PRDTC pour aider à suivre les progrès et les événements indésirables et fournir des conseils indépendants sur la sécurité des patients et l’accréditation des essais. Le PRDTC peut fournir l’accès au CSSD en tant que ressource pour votre étude, conditionnel à l’approbation du comité.
Téléchargez les termes de référence ici (en anglais uniquement).
Le PRDTC peut fournir un soutien pour l’intégration d’un maximum de deux patient, famille ou donneur (PFD) partenaires dans votre équipe de recherche. Ce(s) PFD partenaire(s) sera(ont) pleinement intégré à l’équipe en apportant leurs expériences vécues et leurs expertises pour améliorer l’étude. Le PRDTC peut également fournir un soutien complet pour le déplacement du partenaire afin qu’il assiste au Congrès scientifique annuel du PRDTC sur demande et si nécessaire (une fois pendant la durée du projet). Le PFD partenaire fera également partie de notre Plateforme de partenariat patients, familles et donneurs et aura accès à de la formation et du mentorat.
Le PRDTC peut mettre les chercheurs en contact avec les bons experts pour obtenir des conseils sur la conception et la réalisation d’essais cliniques, y compris l’accès au soutien méthodologique, l’organisation de la recherche sous contrat, l’aide à l’identification des contacts sur les sites pour les études multicentriques, et la facilitation d’un comité d’examen pour un protocole d’essai.
Téléchargez les politiques du PRDTC sur l’approbation des directives cliniques.
Tous les stagiaires du PRDTC pour lesquels un soutien est demandé doivent s’inscrire et participer pleinement à la Plateforme d’éducation et développement de carrière, qui permet aux stagiaires d’accéder à notre programme national, à nos webinaires de formation et à notre programme de mentorat structuré.
L’équipe de gestion centrale du PRDTC peut être impliquée tout au long du projet pour offrir un soutien logistique, y compris l’organisation de téléconférences, de webinaires et de réunions en présentiel (lorsque cela est possible) ainsi que pour soutenir la mise en place d’une collaboration nationale. Le PRDTC peut également contribuer à l’organisation de petites réunions de recherche et prendre en charge l’espace de réunion et le support technique. Ce soutien comprend également l’accès à nos plateformes de communication pour les réunions d’équipe, y compris les webinaires, les réunions par Zoom, et notre système de partage de fichiers.
Le PRDTC peut vous aider à communiquer votre projet par le biais de nos appels thématiques mensuels et de notre Congrès scientifique annuel. Nous pouvons coordonner le développement, la traduction (français/anglais) et la diffusion d’un document FAITS EN BREF pour communiquer et éduquer le public et les experts du domaine sur votre sujet de recherche. Les résultats du projet peuvent être partagés via nos divers canaux de communication, y compris les médias sociaux, et le matériel éducatif et les ressources pour les patients, les familles et les donateurs peuvent être partagés via le Portail des patients du PRDTC.
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* Des conditions s’appliquent. Les montants sont sujets à changement.
ity of Alberta and has received training in patient-oriented research through the University of Calgary’s PACER (Patient and Community Engagement Research) Program. He is the Patient, Family, and Donor Partnerships & Education Manager with the Canadian Donation and Transplantation Research Program. In this role, Manuel builds relationships patient partners with investigators and strengthens capacity among CDTRP patient partners.
Anders Billström 
Gareth Wiltshire
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Sherrie Logan 
born and raised in Edmonton, AB. With a degree in Music Performance (saxophone performance) and Education, Lindsey has taught for over a decade in the Edmonton Public School system. When she is not teaching, she is very involved in the music community, performing in the Edmonton Winds, conducting her own community ensemble (The Beer League Band) and on numerous musical boards across the province. For the past 5 years, Lindsey has had to take a break from teaching after having her amazing son, George. Maternity leave did not goes as expected as George was diagnosed with Dilated Cardiomyopathy at 5 months old and required 2 heart transplants before the age of 4. During this time, Lindsey has also began to dedicate her time building and expanding her charity: Big Gifts for Little Lives, where they raise money to fund Pediatric Heart Transplant research at the Stollery.
Okonofua’s bio
Dr. Caigan Du is a scientist at the Vancouver Coastal Health Research Institute and an assistant professor in the Department of Urologic Sciences at the University of British Columbia. He received a Ph.D. degree in Biochemistry in UK and postdoctoral training in Immunology in USA. He is interested in the pathogenesis of kidney ischemia-reperfusion injury and transplant rejection, and molecular control of urinary malignancies. He has been studying the impact of kidney donor-derived factors on renal allograft rejection, and the molecular pathways of kidney injury and regeneration in experimental models. He is also interested in developing medical solution including drugs made from natural compounds for all kinds of health problems, including immune disorders, organ preservation, kidney failure and urinary cancer. He is the PI of many grant supports from the Kidney Foundation of Canada and the Canadian Institutes of Health Research.
Heather Badenoch is a non-directed living liver donor and communications strategist. As the president of Village PR, she provides strategic communications direction and training to not-for-profit clients in community and health. An active transplant volunteer, Heather helps transplant candidates find living donors by running their public appeals, small and large, pro-bono. She also mentors potential living donors on the path to living donation. Heather is a volunteer with the UHN Centre for Living Organ Donation and the Canadian Donation and Transplant Research Program. She and her spouse adopt rescue dogs and volunteer together with Community Veterinary Outreach, a group providing free veterinary care to the pets of people who are homeless.
Sean Dicks is a clinical psychologist who has 20 years’ experience supporting both families of organ donors and transplant recipients. While it is rare for him to have contact with a donor family and recipient linked to the same organ donation-transplantation event, his contact with families who have lived experience with organ donation on the one hand, and patients who have received transplants on the other hand has provided opportunities to explore how their journeys become linked when they attempt to make sense of and find meaning in their respective crises.
Terri Hansen-Gardiner is a Cree speaking Metis woman from Northern Saskatchewan as well as a 10 year Breast Cancer Survivor. Her tireless spirit and dedication to her community is undeniable. Terri is a cancer survivor who travels around the province to provide assistance, information, and support to Indigenous patients who are trying to access and navigate the cancer care system.
Dr. Golnaz Karoubi is Assistant Scientist at the Toronto General HospitalResearch Institute and principal investigator in the Latner Thoracic Research Labs. She currently holds an Assistant Professor appointment in the department of Laboratory Medicine and Pathobiology and a cross-appointment in the department of Mechanical and Industrial Engineering at the University of Toronto. Dr. Karoubi received her PhD in Applied Science and Engineering at the University of Toronto and joined the Lung Regenerative Medicine Program in the Department of Clinical Research in Berne University, Switzerland for a post-doctoral research fellowship. She stayed on as a Group Leader in 2008 to direct the basic and transitional science as related to Cancer Stem Cell and Lung Regenerative Medicine in the Department of Biomedical Research at the University of Berne until 2012. In early 2012, she joined the team of Dr. Tom Waddell at the Toronto General Hospital Research Institute as a Senior Scientific Associate and was appointed to Assistant Scientist at the Toronto General Hospital Research Institute (University Health Network) in November 2019 and to Assistant Professor in the Department of Laboratory Medicine and Pathobiology in July 2020.
Dr. Haykal graduated from the University of Ottawa Faculty of Medicine in2007 as class valedictorian and silver medalist, and subsequently completed her residency training in Plastic and Reconstructive Surgery at the University of Toronto in 2016. During her residency, she completed a four-year Doctorate of Philosophy (PhD) in tissue engineering, regenerative medicine and immunology with a focus on tracheal reconstruction. She obtained numerous grants and awards including a CIHR Vanier Scholarship. Dr. Haykal then pursued fellowship training in microsurgical reconstruction at the Albany Medical Centre in New York. Dr. Haykal joined the University Health Network and the Toronto General Hospital in 2018. Her clinical focus is on complex oncological reconstruction and microsurgical reconstruction of the breast, head and neck and extremity. She started a lymphedema program in 2019 where she offers microsurgical techniques for the treatment of lymphedema.
Dr. Ahmed is a Professor in the Cumming School of Medicine at the University of Calgary. The recipient of the 2022 Hypertension Canada Senior Investigator Award, she is a nephrologist and clinician-scientist with a focus on sex and gender differences in human cardiovascular/kidney physiology and clinical outcomes. Dr. Ahmed is the Vice Chair (Research) for the Department of Medicine, Lead of the Libin Institute Women’s Cardiovascular Health Research Initiative at the University of Calgary and Lead of the Alberta Strategy for Patient Oriented Research Capacity Development Platform. Dr. Ahmed is an Advisory Board member for the Canadian Institutes of Health Research Institute of Gender and Health, a member of the Canadian Medical Association Journal Governing Council and the President-Elect for the Organization for the Study of Sex Differences.
r. Christopher Nguan is an Associate Professor at the University of British Columbia in the Department of Urological Sciences, Surgical Head of Kidney Transplantation at Vancouver General Hospital and the Director of the Surgical Technologies Experimental Laboratory & Advanced Robotics (STELLAR) facility at Vancouver General Hospital.
r Caroline Lamarche is a clinician scientist and transplant nephrologist at Maisonneuve-Rosemont Hospital. She is an assistant clinical professor at the Université de Montréal. After her nephrology training at the Université de Montréal (2015), she completed a Master degree on the use of adoptive immunotherapy to treat/prevent BK nephropathy in kidney transplant recipients. She then pursued a post-doctoral fellowship with Dr. Megan Levings at the University of British Columbia on the use of chimeric antigen receptor (CAR) regulatory T cells (Tregs) to induce transplant tolerance. Her lab is working on the development of adoptive immunotherapy in nephrology and understanding Treg dysfunction.
