Bouse CDTRP Research Innovation – Dre Suze Berkhout

Grâce à sa collaboration avec des organisations partenaires, le PRDTC est heureux d’annoncer les résultats de son Concours annuel de subventions à la recherche et à l’innovation visant à financer de nouveaux projets passionnants. Au cours des prochaines semaines, nous présenterons tous les projets financés dans le cadre du concours 2022.

Bouse CDTRP Research Innovation 

Dre Suze Berkhout

  • Principale affiliation : University Health Network
  • Thème 5 – Rétablir la santé à long terme
  • Titre : Temporalities of Cure: A qualitative study of psychosocial support needs and long-term survivorship in liver transplantation
Résumé (en anglais)

Liver transplantation, while being a definitive treatment for end-stage liver disease, often has increasing complications as patients and families move from the immediate post-transplant experience to long-term survivorship. Serious medical and mental health challenges are common. But many of the support needs of patients and families are not well-understood in this more chronic trajectory and there is a lack of evidence-based interventions dedicated toward supporting people through the survivorship journey. These challenges may be accentuated by the common expectation that transplantation offers a definitive cure, and that illness is experienced pre- rather than post-transplant. This project uses qualitative and arts-based research methods to characterize the current state of knowledge surrounding psychosocial support needs for recipients and caregivers who are in a longer-term post-transplant time-course and explore where there are gaps in knowledge and practice. Through a literature review, a critical analysis of how psychosocial supports are measured and studied, qualitative interviews and observational research, we will be able to understand what psychosocial supports and mental health needs are not being met and begin to conceptualize how this might be addressed. The project will culminate in a series of digital storytelling workshops led by artists, filmmakers, and liver transplant recipients, generating digital short films that communicate the compelling stories of long-term liver transplant survivors and share their knowledge of how to best support them as their journey progresses.

« Le PRDTC est fier de soutenir cet important projet qui explorera les besoins des transplantés hépatiques en matière de soutien psychosocial. Les patients et leur famille nous parlent souvent de l’importance de la recherche axée sur le bien-être à long terme, y compris la santé mentale. Nous sommes impatients de voir les courts métrages innovants que ce projet produira, grâce à des approches de recherche basées sur les arts pour mieux comprendre et communiquer les expériences des patients et des familles. »

Dre Patricia Gongal, Directrice générale du PRDTC