
World Sickle Cell Day 2025
June 19 is World Sickle Cell Day, a time to raise awareness about the challenges faced by individuals living with sickle cell disease and to highlight the importance of equitable care. In honour of this day, CDTRP spoke with Sylvia Okonofua, founder and Executive Director of Black Donors Save Lives.
In this interview, Sylvia shares:
- The mission and vision behind Black Donors Save Lives
- How health policy affects the diversity of donor registries
- Her advocacy journey and what continues to fuel her work
- Her hopes for the future of sickle cell care and the role of community-led change
Through her insights, Sylvia reminds us that advancing donor equity is not just about increasing numbers — it’s about restoring trust, transforming systems, and creating hope. We invite you to listen to the full interview below.
We encourage you to learn more about sickle cell, and support organizations doing important work in the field.
Black Donors Save Lives
Black Donors Save Lives is a federal nonprofit organization that works to address racial disparity in blood, stem cell, and organ and tissue donor pools impacting patients from African, Caribbean and Black (ACB) communities.

Sickle Cell Awareness Group of Ontario (SCAGO)
The Sickle Cell Awareness Group of Ontario (SCAGO) started on June 14th, 2005 as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man—Sunday Afolabi.
SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in research, health promotion, patient and care providers’ education, community awareness, and the development of best practice guidelines.
