New Patient Partner Profile: Amanda Kuhn

We are happy to welcome to the Canadian Donation and Transplantation Research Program (CDTRP) new members of diverse areas to join our community of researchers, clinicians, patient/family/donor partners and trainees who are dedicated to improving the lives of organ donors and recipients. As a new member, people are an essential part of our mission to advance the science of donation and transplantation and develop innovative, evidence-based approaches to improve outcomes for patients in Canada and around the world.

We are thrilled to have Amanda Kuhn joining CDTRP Patient, Family, and Donor Partnership Platform, as a new patient partner. Amanda is a liver transplant recipient and is joining CDTRP Theme 5 – Restore Long-term Health.

We have asked Amanda a few questions that you can read below.

What brought you to CDTRP’s Patient, Family, and Donor Research Platform?
I was initially approached by the CDTRP to participate in Chantal Bemeur’s “What do we know about nutrition and lifestyle to support people living with cirrhosis” as a PFD to share my story of living with cirrhosis and liver transplantation. I look forward to continued participation and sharing my story to connect with others.
What are your areas of research interest and experience in patient research?
What new areas of interest do you want to explore, and which skills would you like to build on?

I am also interested in the theme of improving a culture of donation as this is key to me in my role as director of British Columbia for the Canadian Transplant Association.

Tell us a fun fact about yourself!
About the CDTRP Patient, Family, and Donor Partnership Platform

A strong, central feature of the CDTRP, the Patient, Family and Donor (PFD) Partnership Platform gives patients, caregivers and living donors a voice while offering an environment to collaborate between families, investigators, project leads and CDTRP Themes. Nationwide PFD participation is a research priority in many CDTRP projects, contributing to the transfer of knowledge and positive impact on transplantation and donation in Canada.

Learn more.