Solid Organ Transplantation: An Educational Mini-Series for Patients
Kidney transplantation can be overwhelming. Patients and caregivers must learn new information and navigate the healthcare system. Patients must undergo a series of tests and appointments to be deemed suitable for transplant. The journey does not end after the transplant. Transplant recipients must take immunosuppressive medications and commit to new lifestyle changes.
Dr. Holly Mansell, Nicola Rosaasen and team created a six-part video series to help patients and caregivers learn about kidney transplant. Health care providers share their knowledge, and people living with kidney disease share their experiences. It is their hope that these videos will help patients to learn what they can do to have a successful transplant. You can watch the videos below or here. They are accessible with English, French and Cree subtitles.
Copyright © University of Saskatchewan, 2017. All rights reserved.
These videos are intended only for use by patients, caregivers, family members, and transplant care providers. Unauthorized use or modification to any of the images or content of any type is strictly prohibited without permission of the copyright holder.
Study 1 Results: “A Randomized Controlled Trial of a Pre-Transplant Education Intervention”
- Project Co-Leads: Holly Mansell, Nicola Rosaasen
- Creative Team: Rahul Mainra, Paraag Trivedi, Azaad Kukha-Bryson, Raj Padmanabh
- Study Site Leads/Facilitators: Jenny Wichart, Michele Hoffert, Kevin Wen, Anita Wong, Patty West-Thielke, Bita Biteni, Cindy Luo, Ahmed Shoker
Summary of the study
- 162 adult participants were enrolled in the study from Saskatoon, Regina, and Calgary
- Participants were ‘randomized’ like flipping a coin, into one of two groups. The health care team did not know which group the participants were in.
- One group received the usual education provided by their transplant center.
- The other group also received a set of 6 educational videos that participants could watch at home, whenever they wanted, on the internet or a DVD. The videos were developed by health care providers and patients.
- 132 participants completed the study by filling out two questionnaires (one at study enrolment and the other approximately one month later). The questionnaires asked about transplant knowledge, education satisfaction, quality of life and self-efficacy (how a person’s beliefs affect their actions).
- Nearly 80% (50/64) of those who were provided with the videos watched them
- Participants who watched the videos had more improvement in their transplant knowledge. They were also more satisfied with their transplant education.
The content for these videos was informed by a needs assessment with patients and health care providers. This process has been documented in the following publications:
- Rosaasen N, Mainra R, Kukha-Bryson A, Nhin V, Trivedi P, Shoker A, Wilson J, Padmanabh R, *Mansell H. Development of a patient-centered video series to improve education before kidney transplantation. Patient Education and Counselling. 2018; 101 (9):1624-1629. https://doi.org/10.1016/j.pec.2018.04.014
- Rosaasen N, Mainra R, Shoker A, Wilson J, Blackburn D, *Mansell H. Education before kidney transplant: What do patients need to know? Progress in Transplantation. 2015 DOI: 10.1177/1526924816685862. http://hdl.handle.net/10388/12473
- Trivedi P, Rosaasen N, *Mansell H. Education Before Kidney Transplantation: The Health Care Provider’s Perspective. Progress in Transplantation. 2016 Dec;26(4):322-327. doi: 10.1177/1526924816664081. Epub 2016 Sep 20. PMID: 27555072. http://hdl.handle.net/10388/12474
- Jones J, Rosaasen N, Taylor T, Mainra R, Shoker A, Blackburn D, Wilson J, *Mansell H. Health Literacy, Knowledge, and Patient Satisfaction Before Kidney Transplantation. Transplant Proceedings. 2016;48(8):2608-2614.doi:10.1016/j.transproceed. http://www.sciencedirect.com/science/article/pii/S0041134516304031
The videos were studied with patients who were awaiting a transplant and those who have received a transplant. Results of the first study are now available.
- *Mansell H, Rosaasen N, West-Thielke P, Wichart J, Daley C, Mainra R, Shoker A, Liu J, Blackburn D. Randomised controlled trial of a video intervention and behaviour contract to improve medication adherence after renal transplantation: the VECTOR study protocol. BMJ Open 2019;9:e025495. doi: 10.1136/bmjopen-2018-025495 https://bmjopen.bmj.com/content/9/3/e025495
- Rosaasen N, Taylor J, Mainra R, Shoker A, Blackburn D, *Mansell H. Development and Validation of the K-TUT (Kidney Transplant Understanding Tool). Transplantation Direct. 2017. DOI:10.1097/TXD.0000000000000647. 99868
- *Mansell H, Rosaasen N, Wichart J, Mainra R, Shoker A, Hoffert M, Blackburn DF, Liu J, Groot B, Trivedi P, Willenborg E, Amararajan M, Wu H, Afful A. A Randomized Controlled Trial of a Pretransplant Educational Intervention in Kidney Patients. Transplant Direct. 2021 Sep 7;7(10):e753. doi: 10.1097/TXD.0000000000001202. PMID: 34514108; PMCID: PMC8425830. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8425830/
Dr. Holly Mansell, Nicola Rosaasen and team would like to thank the many patients, other collaborators, and funders that helped made this project possible!
For more information, visit the University of Saskatchewan website or contact Holly at: email@example.com.