We are pleased to share that Dr. Caroline Tait and the International Indigenous Organ Donation and Transplantation Consortium has been awarded a five-year, $1.75 million CIHR project grant, Addressing Systemic Gaps and Barriers Experienced by Indigenous Peoples when Accessing Organ Donation and Transplantation Medicine.

This Indigenous-driven, patient-oriented research project will establish a First Nations and Métis lived experience database focused on end-stage organ failure and organ donation and transplantation across Saskatchewan, Alberta, and British Columbia. The grant will also advance the work of the Consortium including increasing membership and cross country collaborations. The project brings together an interdisciplinary team that includes Indigenous leaders, persons with lived experience, healthcare providers, Canadian and international researchers, and organ donation and transplantation decision-makers.

In Canada, First Nations, Métis, and Inuit peoples are overrepresented among patients living with ESOF, yet Indigenous and non-Indigenous decision-makers and health systems lack a clear understanding of the barriers Indigenous patients and their families experience when accessing donation and transplantation services.

Through community engagement and partnership with Indigenous leaders and patients, the team will explore the lived experiences of patients and caregivers navigating organ failure and transplantation pathways. The project will examine how factors such as identity, geography, age, gender, socioeconomic status, and health system jurisdiction shape access to care.

This work represents a significant step toward amplifying lived experience and informing system-level change to improve health outcomes for Indigenous patients and families.

Learn more here: https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=533495&lang=en