Exploring the legal and policy frameworks governing information disclosure between donor families and transplant recipients

In Canada, the law protects the anonymity and privacy of organ donors and transplant recipients. Within this legal framework, the organ donation and transplantation community has developed a range of policies that permit the disclosure of certain types of information between donor families and transplant recipients. Some donor families and transplant recipients have argued that these laws and policies are overly restrictive and have advocated for the option to disclose identifying information and the opportunity to make contact with one another. This presentation will explore the current legal and policy frameworks in Canada and consider whether these frameworks should be revised to permit greater information disclosure.