Please note the following program was carried out on October 15, 2020.
 
11:00 – 11:15 – Welcome Remarks and Overview of the Event

11:15 – 11:25 – What it means to be a Patient, Family and Donor Research Partner
Dr. Marie-Chantal Fortin, CDTRP PFD Platform Lead and Sylvain Bédard* , CDTRP PFD Co-Lead
In this introduction, you will learn what it means to be a part of a research project as a patient, family or donor within the CDTRP.

11:25 – 11:40 – Keynote: Projet Laurent
Dr. Hélene Tessier*, Laurent Tessier* and Dr. Mélanie Dieudé
Enjoy a review of Projet Laurent, a research initiative that stemmed from a pediatric patient and his mother about the importance of companionship and a pet during recovery from transplant.

11:40 – 11:55 – Panel and Q&A: Is there a place in research for patient, family and donor initiatives?
Dr. Hélene Tessier*, Sylvain Bédard* and Dr. Mélanie Dieudé
Join in the discussion as we discuss patient-led and initiated research from a patient, family and donor standpoint.

11:55 – 12:00 – Break

12:00 – 12:15 – Research 101: Family-Caregiver Focus
Sarah Pol and Dr. Sonny Dhanani
Listen to a clinician and a research assistant discuss the importance of having a family-caregiver input in guiding a research project for successful outcomes.

12:15 – 12:30 – My Experience in Research and Q&A
Joanna Mitchell* and Heather Talbot*
Learn from two CDTRP Patient, Family and Donor Research partners discuss their experience as donor family and caregiver.

12:30 – 12:45 – Care Reform during COVID-19: Engaging with Patient, Family and Donor Experiences
Anna Horton (CDTRP Trainee)

12:45 – 13:00 – Closing Remarks and End of Block I

*Patient, Family and Donor Representative

14:00 – 14:05 – Welcome back

14:05 – 14:40 – Keynote Panel and Q&A: The Impact of COVID-19 on the Transplant Recipient Community
Dr. James Lan, Dr. Isabelle Doré, Sherrie Logan* and Elizabeth Ingram*
Listen and learn from two researchers and two patient and family research partners share their experiences of the impact of COVID-19 on the transplant recipient community and their families. Audience discussion and feedback will be welcome!

Supported by Astellas Pharma Canada, Inc. 

14:40 – 14:45 – Break

14:45 – 15:00 – AOG: A Community-based Initiative and Q&A
Linda Powell* and Murray Wilson*
Enjoy this presentation of a patient-led organizational and economic assessment being conducted within Alberta.

15:00 – 15:25 – Research 101: Transplant Recipient Focus and Q&A
Liz Schick, Brenda Brown and Donna Hart*
Representatives from the Canadian Transplant Association and World Transplant Games Federation along with athlete and transplant recipient, Donna Hart, will discuss the history and anecdotal evidence and examples of how sport facilitates transplant health.

15:25 – 15:45 – My Experience in Research: Peer Review, Knowledge Translation and Training and Q&A
Larry Worfolk*, Shelby Gielen* and Dr. Leanne Stalker
Enjoy this moderated session of two patient, family and donor research partners who will discuss their roles in research and how their own knowledge has grown.

15:45 – 16:00 – Can-Restore Intro and Dance Break
Dr. Sunita Mathur, Dr. Tania Janaudis-Ferreira and Manoela Ferreira (CDTRP Trainee)
Bust some moves with us!

16:00 – 16:30 – Panel and Q&A – Deemed Consent: Canada’s Vantage Point
Dr. Matthew Weiss, Alessandro Marcon and Hans Vorster*
Since Nova Scotia’s new legislation of deemed consent, this panel of experts will discuss the overall objectives and evaluation of public opinion being conducted.

16:30 – 16:50 – An Introduction to Health Canada ODT Collaborative and Patient Advocate Advisory Committee and Q&A
Cindy Moriarty, Randy Spensley* and Lydia Lauder
Enjoy a brief introduction of Health Canada’s initiatives involved in donation and transplantation.

16:50 – 17:00 – Thank you and closing remarks

*Patient, Family and Donor Representative

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