Welcome to new Patient, Family, Donor Partner: Charles Cook

The CDTRP’s Patient, Family and Donor (PFD) Partnership Platform is growing and we’re pleased to welcome our newest member, Charles Cook. Charles is a patient researcher and PFD representative on Theme 1 and part of the Mental Health and Wellness Hub. Our PFD Platform Manager, Manuel Escoto, recently caught up with Charles to understand more about what his goals are for being a patient partner with the CDTRP.

What brought you to CDTRP’s Patient, Family, and Donor Research Platform?

I was invited to learn more about the PFD Platform by Manuel after he found out that I was a patient partner on a project for Dr. Musci Innovation Grant. I like what I have learned so far. I look forward to the opportunity to share my story, experiences and lessons learned with the hope of benefiting others.

What are your areas of research interest and experience in patient research?

I have been a patient partner on a project that involved the effects of intradialytic exercise on hemodialysis patients. I have also been a patient partner on a project involving an update to the Ottawa Statement guidelines for research ethics in cluster randomized trials. I’ve also participated in the Transplant Ambassador Program (TAP) through Can-SOLVE CKD and I have been a TAP Ambassador since the program began in 2018.

What new areas of interest do you want to explore, and which skills would you like to build on?

I am interested in learning about and participating in research that involves increasing availability and access to organ transplants for all patients. I am also interested in research concerning optimizing long term health post transplant.

Tell us a fun fact about yourself!

I grew up in the town of Stone Mountain Georgia, in Metro Atlanta. Stone Mountain is home to the largest piece of exposed granite in the world, which is how the town of Stone Mountain got its name.

About the Patient, Family and Donor Partnership Platform

A strong, central feature of the CDTRP, the Patient, Family and Donor (PFD) Partnership Platform gives patients, caregivers and living donors a voice while offering an environment to collaborate between families, investigators, project leads and CDTRP Themes. Nationwide patient, family and donor participation is a research priority in all CDTRP projects, contributing to the transfer of knowledge and positive impact on transplantation and donation in Canada.

Learn more on the PFD Platform here.