New Patient Partner Profile: Kim O’Reilly

We are happy to welcome to the Canadian Donation and Transplantation Research Program (CDTRP) new members of diverse areas to join our community of researchers, clinicians, patient/family/donor partners and trainees who are dedicated to improving the lives of organ donors and recipients. As a new member, people are an essential part of our mission to advance the science of donation and transplantation and develop innovative, evidence-based approaches to improve outcomes for patients in Canada and around the world.

We are thrilled to have Jessica Ntofon joining CDTRP Patient, Family, and Donor Partnership Platform, as a new patient partner. Jessica is a double liver and kidney recipient and pancreas transplant recipient and is joining CDTRP Theme 5 – Restore Long-term Health.

We have asked Jessica a few questions that you can read below.

What brought you to CDTRP’s Patient, Family, and Donor Research Platform?

I’ve seen the important work being done in donation and transplantation research, and I’ve been inspired to be part of it. Having gone through two liver transplants and one kidney transplant, I want to contribute my lived experience and journey to help shape projects that reflect what patients and families truly need. Joining CDTRP gives me the chance to share my perspective, collaborate with others, and make a difference in research that impacts real lives.

What are your areas of research interest and experience in patient research?

My research interests are in kidney health, equity in care, and culturally safe practices. I’ve been involved with the Krescent Patient Community Advisory Network and the Black Voices for Kidney Health webinar series, where I’ve shared my story and worked with researchers to make projects more inclusive and patient-centred. My lived experience as someone who has undergone two liver transplants and one kidney transplant gives me a unique perspective that I believe will be valuable in shaping research. I also care deeply about mental health and the importance of using my voice to advocate for patients and families, making sure their experiences are recognized and respected. I’ve also contributed to surveys, helping researchers gather patient perspectives and ensure that studies reflect what truly matters to the community.

What new areas of interest do you want to explore, and which skills would you like to build on?

I want to find new ways to advocate for patients and families, particularly by helping research teams recognize the importance of equity and lived experience. I value collaboration and aim to improve my ability to work with diverse groups like patients, families, donors, and researchers to ensure everyone’s voice is heard. I am also eager to develop skills in teaching and sharing knowledge, so I can support others in learning from my experience and inspire more people to participate in patient-oriented research.

Tell us a fun fact about yourself!

I love travelling and boxing, and I’m always chasing the next thrilling adventure. Travelling lets me discover new adventures and experiences, while boxing keeps me disciplined and grounded.

About the CDTRP Patient, Family, and Donor Partnership Platform

A strong, central feature of the CDTRP, the Patient, Family and Donor (PFD) Partnership Platform gives patients, caregivers and living donors a voice while offering an environment to collaborate between families, investigators, project leads and CDTRP Themes. Nationwide PFD participation is a research priority in many CDTRP projects, contributing to the transfer of knowledge and positive impact on transplantation and donation in Canada.

Learn more.