{"id":32552,"date":"2025-06-24T10:34:01","date_gmt":"2025-06-24T14:34:01","guid":{"rendered":"https:\/\/cdtrp.ca\/journee-mondiale-de-la-drepanocytose-2025-entretien-avec-sylvia-okonofua\/"},"modified":"2025-06-24T10:34:01","modified_gmt":"2025-06-24T14:34:01","slug":"journee-mondiale-de-la-drepanocytose-2025-entretien-avec-sylvia-okonofua","status":"publish","type":"post","link":"https:\/\/cdtrp.ca\/fr\/journee-mondiale-de-la-drepanocytose-2025-entretien-avec-sylvia-okonofua\/","title":{"rendered":"Journ\u00e9e mondiale de la dr\u00e9panocytose 2025 &#8211; Entretien avec Sylvia Okonofua"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><img decoding=\"async\" width=\"1600\" height=\"900\" title=\"World Sickle Cell Day 2025 (1)\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png\" alt class=\"lazyload img-responsive wp-image-32526\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271600%27%20height%3D%27900%27%20viewBox%3D%270%200%201600%20900%27%3E%3Crect%20width%3D%271600%27%20height%3D%27900%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-200x113.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-400x225.png 400w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-600x338.png 600w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-800x450.png 800w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-1200x675.png 1200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png 1600w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 1200px\" \/><\/span><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-text fusion-text-1\"><h4 style=\"text-align: center;\"><strong>Journ\u00e9e mondiale de la dr\u00e9panocytose 2025<\/strong><\/h4>\n<p>Le 19 juin marque la Journ\u00e9e Mondiale de la Dr\u00e9panocytose, un moment d\u00e9di\u00e9 \u00e0 la sensibilisation aux d\u00e9fis rencontr\u00e9s par les personnes atteintes de cette maladie et \u00e0 l&rsquo;importance de soins \u00e9quitables. En l&rsquo;honneur de cette journ\u00e9e, le PRDTC s&rsquo;est entretenu avec <strong>Sylvia Okonofua<\/strong>, fondatrice et directrice g\u00e9n\u00e9rale de <strong>Black Donors Save Lives<\/strong>.<\/p>\n<p>Dans cette entrevue, Sylvia partage :<\/p>\n<ul>\n<li>La mission et la vision qui sous-tendent l&rsquo;organisation.<\/li>\n<li>Elle aborde \u00e9galement l&rsquo;impact de la politique de sant\u00e9 sur la diversit\u00e9 des registres de donneurs.<\/li>\n<li>Son parcours comme activiste et ce qui continue de l&rsquo;animer dans son travail.<\/li>\n<li>Ses espoirs pour l&rsquo;avenir des soins li\u00e9s \u00e0 la dr\u00e9panocytose et le r\u00f4le du changement men\u00e9 par les communaut\u00e9s.<\/li>\n<\/ul>\n<p>\u00c0 travers ses r\u00e9flexions, Sylvia nous rappelle que faire progresser l&rsquo;\u00e9quit\u00e9 en mati\u00e8re de dons ne consiste pas seulement \u00e0 augmenter les chiffres, mais aussi \u00e0 restaurer la confiance, transformer les syst\u00e8mes et cr\u00e9er de l&rsquo;espoir.<\/p>\n<p>Nous vous invitons \u00e0 \u00e9couter l&rsquo;int\u00e9gralit\u00e9 de l&rsquo;entretien ci-dessous.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:600px;--awb-max-height:360px;--awb-align-self:center;--awb-width:100%;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:60%;\" ><iframe title=\"YouTube video player 1\" src=\"https:\/\/www.youtube.com\/embed\/oCVQepU8oQg?wmode=transparent&autoplay=0\" width=\"600\" height=\"360\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2\"><p>Nous vous encourageons \u00e0 en savoir plus sur la dr\u00e9panocytose et \u00e0 soutenir les organisations qui \u0153uvrent dans ce domaine.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-3\"><div class=\"av-special-heading av-lx9byntg-48a2a8b8f690730bf4e9eedb8730d4ea av-special-heading-h1 blockquote modern-quote modern-centered avia-builder-el-7 el_before_av_textblock avia-builder-el-first av-inherit-size\">\n<h5 class=\"av-special-heading-tag \">Black Donors Save Lives<\/h5>\n<\/div>\n<section class=\"av_textblock_section av-lx9cm0hh-945899c9436483f710618e3245b65581 \">\n<div class=\"avia_textblock\">\n<p>Black Donors Save Lives is a federal nonprofit organization that works to address racial disparity in blood, stem cell, and organ and tissue donor pools impacting patients from African, Caribbean and Black (ACB) communities.<\/p>\n<p><strong><a href=\"https:\/\/bdsl.ca\/\">Learn more<\/a><\/strong><\/p>\n<\/div>\n<\/section>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-2 hover-type-none\"><img decoding=\"async\" width=\"300\" height=\"300\" title=\"cropped-BDSL-Circular-Logo-Wineberry-300&#215;300\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png\" alt class=\"lazyload img-responsive wp-image-32530\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27300%27%20viewBox%3D%270%200%20300%20300%27%3E%3Crect%20width%3D%27300%27%20height%3D%27300%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1-200x200.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png 300w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 300px\" \/><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-4\"><div class=\"av-special-heading av-lx9byntg-48a2a8b8f690730bf4e9eedb8730d4ea av-special-heading-h1 blockquote modern-quote modern-centered avia-builder-el-7 el_before_av_textblock avia-builder-el-first av-inherit-size\">\n<h5 class=\"framer-text\">Sickle Cell Awareness Group of Ontario (SCAGO)<\/h5>\n<\/div>\n<section class=\"av_textblock_section av-lx9cm0hh-945899c9436483f710618e3245b65581 \">\n<div class=\"avia_textblock\">\n<p class=\"framer-text\">The Sickle Cell Awareness Group of Ontario (SCAGO) started\u00a0on June 14th, 2005\u00a0as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man\u2014<a class=\"framer-text\" href=\"https:\/\/sicklecellanemia.ca\/history\" target=\"_blank\" rel=\"noopener\">Sunday Afolabi<\/a>.\u00a0<br class=\"framer-text\" \/><br class=\"framer-text trailing-break\" \/><\/p>\n<p class=\"framer-text\">SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in\u00a0research, health promotion, patient and care providers\u2019 education, community awareness, and the development of best practice guidelines.<\/p>\n<p><strong><a href=\"https:\/\/www.sicklecellanemia.ca\/\">Learn more<\/a><\/strong><\/p>\n<\/div>\n<\/section>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-3 hover-type-none\"><img decoding=\"async\" width=\"375\" height=\"95\" title=\"SCAGO\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png\" alt class=\"lazyload img-responsive wp-image-32528\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27375%27%20height%3D%2795%27%20viewBox%3D%270%200%20375%2095%27%3E%3Crect%20width%3D%27375%27%20height%3D%2795%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO-200x51.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png 375w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 375px\" \/><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":8,"featured_media":32526,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,75],"tags":[],"class_list":["post-32552","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general","category-featured"],"_links":{"self":[{"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/posts\/32552"}],"collection":[{"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/comments?post=32552"}],"version-history":[{"count":2,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/posts\/32552\/revisions"}],"predecessor-version":[{"id":32554,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/posts\/32552\/revisions\/32554"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/media\/32526"}],"wp:attachment":[{"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/media?parent=32552"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/categories?post=32552"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cdtrp.ca\/fr\/wp-json\/wp\/v2\/tags?post=32552"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}