![](\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/04\/International-Forum-Website-Header_FR.png\" "\\"International")
<\/span><\/div><\/div>Aper\u00e7u g\u00e9n\u00e9ral<\/strong><\/span><\/h3>\nTransplant Qu\u00e9bec et le Programme de recherche en don et transplantation du Canada ont organis\u00e9 conjointement le Forum l\u00e9gislatif et politique international sur le don et la transplantation<\/strong> (le Forum). Le Forum a r\u00e9uni 61 experts internationaux du don et de la transplantation, y compris des\u00a0 patients, familles et donneurs partenaires, afin de fournir des conseils sur la structure d’un syst\u00e8me id\u00e9al de don et de transplantation d’organes et de tissus (DTOT). Le forum a \u00e9labor\u00e9 94 recommandations consensuelles d’experts, fond\u00e9es sur des donn\u00e9es probantes, dans le but d’am\u00e9liorer les lois et les politiques relatives au don et \u00e0 la transplantation d’organes et de tissus.<\/p>\nSept groupes de travail<\/strong> – appel\u00e9s \u00ab domaine<\/strong> \u00bb – ont \u00e9t\u00e9 charg\u00e9s de g\u00e9n\u00e9rer les sujets m\u00e9ritant des recommandations, de rassembler et de r\u00e9sumer les preuves pertinentes li\u00e9es \u00e0 ces sujets, et de cr\u00e9er des recommandations. Les recommandations relient les preuves et les concepts \u00e9thiques \u00e0 la r\u00e9forme l\u00e9gislative et politique et sont applicables aux juridictions qui d\u00e9veloppent ou r\u00e9forment leur syst\u00e8me de DTOT. Voir les d\u00e9tails de chaque domaine ci-dessous.<\/p>\n<\/div><\/div><\/i><\/i><\/span>Domaine 1 \u2013 Principes \u00e9thiques de base<\/span><\/a><\/h4><\/div>\nResponsable : <\/strong><\/span>Dr Dale Gardiner, NHS Blood and Transplant, London, United Kingdom<\/strong><\/h6>\nComit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n\n- Dre Curie Ahn, National Medical Center, Seoul, South Korea<\/li>\n
- Dre Aviva Goldberg, University of Manitoba, Winnipeg, Canada<\/li>\n
- Dr Matthew Weiss, Directeur m\u00e9dical \u2013 Don d’organes, Transplant Qu\u00e9bec, Qu\u00e9bec, Canada<\/li>\n
- Dr Andrew McGee, Australian Centre for Health Law Research, Faculty of Business and Law, QUT, Brisbane, Australia<\/li>\n
- Dr Sanjay Nagral, Jaslok Hospital & Research Centre, Mumbai, India<\/li>\n
- Prof Christy Simpson, Department of Bioethics, Dalhousie University (Primary appt); Australian Centre for Health Law Research (Adjunct appt); Canadian Blood Services (Bioethics Consultant), Halifax, Canada<\/li>\n
- M. Austin Kinsella, patient partenaire du PRDTC<\/li>\n<\/ul>\n
\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\nThe Baseline Ethical Principles<\/em> domain proposes an ethical framework to assist stakeholders and decision-makers in incorporating ethical principles into OTDT practice and policy to maintain public trust and integrity.<\/span>\u00a0<\/span><\/p>\nThe domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\nThe proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\nAcc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div><\/i><\/i><\/span>Domaine 2 \u2013 L\u00e9gislation et politiques<\/span><\/a><\/h4><\/div>\nResponsable :<\/strong><\/span>\u00a0<\/strong><\/span>Prof. Maeghan Toews, University of Adelaide, Adelaide, Australia<\/strong><\/h6>\nComit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n\n- Prof Jennifer Chandler, University of Ottawa, Ottawa, Canada<\/li>\n
- Dr Matthew Weiss, Directeur m\u00e9dical \u2013 Don d’organes, Transplant Qu\u00e9bec, Qu\u00e9bec, Canada<\/li>\n
- Prof Thadeus Masson Pope, Mitchell Hamline School of Law, Ottawa, Canada<\/li>\n
- M. Alberto Sandiumenge, University Hospital Vall d\u2019Hebron, Barcelona, Spain<\/li>\n
- M. Roger Pape, patient partenaire du PRDTC<\/li>\n<\/ul>\n
\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\nThe Legislation and Policy<\/em> domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\nAcc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div><\/i><\/i><\/span>Domaine 3 \u2013 Architecture de l'organisation du don d'organes<\/span><\/a><\/h4><\/div>\nResponsables :<\/strong><\/span> Dr Howard Nathan, <\/strong>Gift of Life Donor Program, Philadelphia, United States, Mme Susan Gunderson, <\/strong>LifeSource, Minneapolis, United States, et Mme\u00a0Claire Willement<\/strong>, NHS Blood and Transplant, London, United Kingdom<\/h6>\nComit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n\n- M. Louis Beaulieu, Chief Executive Officer, Transplant Qu\u00e9bec, Montreal, Canada<\/li>\n
- Dr Matthew Weiss, Directeur m\u00e9dical \u2013 Don d’organes, Transplant Qu\u00e9bec, Qu\u00e9bec, Canada<\/li>\n
- M. Manuel Escoto, Programme de recherche en don et transplantation du Canada, Edmonton, Canada<\/li>\n
- M. Anthony Clarkson, NHS Blood and Transplant, London, United Kingdom<\/li>\n
- M. David Hartell, Soci\u00e9t\u00e9 canadienne du sang, Ottawa, Canada<\/li>\n
- Dr G\u00fcnther Kirste, Albert Ludwigs University Freiburg, Medical Center, Freiburg, Germany<\/li>\n
- Mme Helen Opdam, Australian Organ and Tissue Authority, Victoria, Australia<\/li>\n
- Dr Haibo Wang, China Organ Transplant Response System, Hong Kong, China<\/li>\n
- Mme Linda Powell, patiente partenaire du PRDTC<\/li>\n
- M. Richard Ippersiel, patient partenaire du PRDTC<\/li>\n<\/ul>\n
\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\n![\"\"](\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/10\/Organ-Donation-Systems-Visual-Abstract-V2-DH-1024x576.png\")
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The Organ Donation Organization Architecture<\/em> domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\nThe 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\nAcc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div><\/i><\/i><\/span>Domaine 4 \u2013 Mod\u00e8les de consentement au don d'organes et de tissus et registres d'intention de don<\/span><\/a><\/h4><\/div>\nResponsable : <\/strong><\/span>M. Phil Walton, NHS Blood and Transplant, London, United Kingdom<\/strong><\/h6>\nComit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n\n- Dr Stephen Beed, Dalhousie University, Halifax, Canada<\/li>\n
- Dre Alicia Perez Blanco, Organizacion nacional de trasplantes (ONT), Madrid, Spain<\/li>\n
- Mme Alexandra Glazier, New England Organ Bank (CEO), Boston, United States<\/li>\n
- Dr Daniela Salom\u00e3o, Health Department of the Distrito Federal Government, Sao Paulo, Brazil<\/li>\n
- Dr Matthew Weiss, Directeur m\u00e9dical \u2013 Don d’organes, Transplant Qu\u00e9bec, Qu\u00e9bec, Canada<\/li>\n
- Mme Kim Jordison, patiente partenaire du PRDTC<\/li>\n
- Mme Jennifer Kingdon, patiente partenaire du PRDTC<\/li>\n<\/ul>\n
\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\nThe<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\nInstead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\nAcc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> |\u00a0T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div><\/i><\/i><\/span>Domaine 5 \u2013 Don vivant<\/span><\/a><\/h4><\/div>\nResponsable :<\/strong><\/span> Dre Elmi Muller, University of Cape Town, Cape Town, South Africa<\/strong><\/h6>\nComit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n\n- Dr Prosanto Chaudhury, McGill University Health Centre; Directeur m\u00e9dical \u2013 Transplantation d’organes, Transplant Qu\u00e9bec; Montr\u00e9al, Canada<\/li>\n
- Dr Jongwon Ha, Department of Surgery, Seoul National University College of Medicine, Seoul National University Hospital, Seoul, South Korea<\/li>\n
- M. Kirit Mistry, South Asian Health Action Patient, Family, Donor Partner<\/li>\n
- Dr Michel Paquet, Centre hospitalier de l\u2019Universit\u00e9 de Montr\u00e9al (CHUM), Montreal, Canada<\/li>\n
- Dre Sunita Singh, University of Toronto, Toronto General Hospital \/ University Health Network, Toronto, Canada<\/li>\n
- Mme Shilpa Raju, patiente partenaire du PRDTC<\/li>\n
- M. Larry Workfolk, patient partenaire du PRDTC<\/li>\n<\/ul>\n
Scope and Core Themes:<\/strong><\/span><\/h6>\n\n- Donor safety: clinical safety for the donor, long-term follow-up, access to treatment if needed, and donors who travel to donate<\/li>\n
- Non-directed anonymous donors: kidney exchange program, open chains, advanced donation (voucher system)<\/li>\n
- Financial neutrality & other barriers to living donation: financial barriers, education awareness, cultural & gender issues, disparate access, prioritization, insurability, and long-term follow-up<\/li>\n
- Public solicitation: Use of various platforms, including social media, to solicit a donor<\/li>\n
- Minor donors: Not a core theme, but should it be included?<\/li>\n<\/ul>\n<\/div><\/div><\/div>
Sept groupes de travail<\/strong> – appel\u00e9s \u00ab domaine<\/strong> \u00bb – ont \u00e9t\u00e9 charg\u00e9s de g\u00e9n\u00e9rer les sujets m\u00e9ritant des recommandations, de rassembler et de r\u00e9sumer les preuves pertinentes li\u00e9es \u00e0 ces sujets, et de cr\u00e9er des recommandations. Les recommandations relient les preuves et les concepts \u00e9thiques \u00e0 la r\u00e9forme l\u00e9gislative et politique et sont applicables aux juridictions qui d\u00e9veloppent ou r\u00e9forment leur syst\u00e8me de DTOT. Voir les d\u00e9tails de chaque domaine ci-dessous.<\/p>\n<\/div> The Baseline Ethical Principles<\/em> domain proposes an ethical framework to assist stakeholders and decision-makers in incorporating ethical principles into OTDT practice and policy to maintain public trust and integrity.<\/span>\u00a0<\/span><\/p>\n The domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\n The proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\n Acc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div> The Legislation and Policy<\/em> domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\n Given that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\n Acc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div> The Organ Donation Organization Architecture<\/em> domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\n The 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\n Acc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> | T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div> The<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\n Instead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\n Acc\u00e9dez \u00e0 la publication<\/span><\/span><\/a> |\u00a0T\u00e9l\u00e9chargez le sommaire de domaine<\/a><\/strong><\/p>\n<\/div><\/div><\/div><\/i><\/i><\/span>Domaine 1 \u2013 Principes \u00e9thiques de base<\/span><\/a><\/h4><\/div>
Responsable : <\/strong><\/span>Dr Dale Gardiner, NHS Blood and Transplant, London, United Kingdom<\/strong><\/h6>\n
Comit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n
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\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\n
<\/i><\/i><\/span>Domaine 2 \u2013 L\u00e9gislation et politiques<\/span><\/a><\/h4><\/div>
Responsable :<\/strong><\/span>\u00a0<\/strong><\/span>Prof. Maeghan Toews, University of Adelaide, Adelaide, Australia<\/strong><\/h6>\n
Comit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n
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\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\n
<\/i><\/i><\/span>Domaine 3 \u2013 Architecture de l'organisation du don d'organes<\/span><\/a><\/h4><\/div>
Responsables :<\/strong><\/span> Dr Howard Nathan, <\/strong>Gift of Life Donor Program, Philadelphia, United States, Mme Susan Gunderson, <\/strong>LifeSource, Minneapolis, United States, et Mme\u00a0Claire Willement<\/strong>, NHS Blood and Transplant, London, United Kingdom<\/h6>\n
Comit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n
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\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\n
<\/p>\n<\/i><\/i><\/span>Domaine 4 \u2013 Mod\u00e8les de consentement au don d'organes et de tissus et registres d'intention de don<\/span><\/a><\/h4><\/div>
Responsable : <\/strong><\/span>M. Phil Walton, NHS Blood and Transplant, London, United Kingdom<\/strong><\/h6>\n
Comit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n
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\nR\u00c9SUM\u00c9 (en anglais seulement)<\/strong><\/span><\/h6>\n
<\/i><\/i><\/span>Domaine 5 \u2013 Don vivant<\/span><\/a><\/h4><\/div>
Responsable :<\/strong><\/span> Dre Elmi Muller, University of Cape Town, Cape Town, South Africa<\/strong><\/h6>\n
Comit\u00e9 d’auteurs :<\/strong><\/span><\/h6>\n
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Scope and Core Themes:<\/strong><\/span><\/h6>\n
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![\"\"](\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/10\/Tissue-Donation-Visual-Abstract-2023-01-12-1024x576.png\")
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