{"id":20253,"date":"2022-10-26T12:59:29","date_gmt":"2022-10-26T17:59:29","guid":{"rendered":"https:\/\/cdtrp.ca\/en\/?post_type=spucpt&p=20253"},"modified":"2022-10-26T12:59:29","modified_gmt":"2022-10-26T17:59:29","slug":"cindy-wen-3mt","status":"publish","type":"spucpt","link":"https:\/\/cdtrp.ca\/en\/spucpt\/cindy-wen-3mt\/","title":{"rendered":"Cindy Wen 3MT"},"content":{"rendered":"

Cindy Wen’s bio<\/strong><\/p>\n

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Cindy Wen is a third year undergraduate student at Western University,\u00a0completing an Honours Specialization in Epidemiology and Biostatistics. She is currently the Team Lead of the Chinese Health Equity Project at the Kidney Health Education and Research Group under the supervision of Dr. Istvan Mucsi, a Transplant Nephrologist at Toronto General Hospital in the University Health Network. Her work primarily focuses on examining potential barriers to living donor kidney transplantation among the Chinese Canadian population. More broadly, her research interests lie in examining the social determinants of health and understanding ethnocultural and gender disparities that create inequitable access to care.<\/p>\n

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\u201cLosing face\u201d as a potential barrier to living donor kidney transplantation for Chinese Canadians in Toronto, Ontario: Preliminary findings from a qualitative analysis<\/strong><\/p>\n

Susan Abbey, Samantha Anthony, Beth Edwards, Kenneth Fung, Jagbir Gill, Jenny Kang, Janet Li, Sarah Pol, Cathy Yang, Istvan Mucsi<\/em><\/p>\n

Background: Patients wishing to pursue living donor kidney transplantation (LDKT), need to communicate their need for a living donor. Hesitancy to discuss this need is a known barrier. Chinese Canadians have reduced access to LDKT. We investigated barriers that Chinese Canadians may face when pursuing LDKT.<\/p>\n

Methods: Adults on dialysis, kidney donors and recipients, and people with no lived experience with kidney disease who self-identify as Chinese Canadian were recruited through snowball and purposive sampling. Individual interviews were conducted via phone and MS Teams in English, Mandarin, and Cantonese. Topics explored include ethnocultural identity, knowledge regarding kidney disease, and treatment options. Interviews were recorded, transcribed verbatim, and translated to English when necessary. Data were analyzed via thematic analysis using inductive and deductive coding strategies.<\/p>\n

Results: \u201cLosing face\u201d or \u201cDi\u016bli\u01cen\u201d is emerging as a major theme from our preliminary data analysis (n=12, 6 females, 6 community members, 5 KT recipients, 1 patient on dialysis). \u201cDi\u016bli\u01cen\u201d is related to social standards regarding social obligation, social integrity, and self-respect. It is rooted in the desire to maintain harmonious relationships and a positive social reputation by avoiding apparent weakness or other causes of embarrassment. Subthemes include: 1) perception of illness as shameful; 2) perception of illness as a personal responsibility; and 3) burden of asking and anticipated need for reciprocity. Participants described that communication about illness may bring shame to the family, so privacy is necessary to avoid rumors, specifically regarding kidney failure. Illness is expected to be managed privately, without burdening others. Finally, asking for large gifts or favors may damage one\u2019s social reputation and require reciprocity.<\/p>\n

Conclusion: \u201cLosing face\u201d is emerging as a potential barrier for considering LDKT among Chinese Canadians. Next, we will co-develop culturally appropriate strategies with community partners to support communication regarding the treatment of kidney failure.<\/p>\n","protected":false},"author":6,"template":"","class_list":["post-20253","spucpt","type-spucpt","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/spucpt\/20253","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/spucpt"}],"about":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/types\/spucpt"}],"author":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/users\/6"}],"wp:attachment":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/media?parent=20253"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}