{"id":13677,"date":"2021-10-28T09:57:19","date_gmt":"2021-10-28T14:57:19","guid":{"rendered":"https:\/\/cdtrp.ca\/en\/?post_type=spucpt&p=13677"},"modified":"2021-10-28T12:23:06","modified_gmt":"2021-10-28T17:23:06","slug":"engaging-caregivers-in-patient-oriented-research-mindfulness-based-stress-reduction-retreat-for-mothers-of-pediatric-heart-transplant-recipients","status":"publish","type":"spucpt","link":"https:\/\/cdtrp.ca\/en\/spucpt\/engaging-caregivers-in-patient-oriented-research-mindfulness-based-stress-reduction-retreat-for-mothers-of-pediatric-heart-transplant-recipients\/","title":{"rendered":"Engaging\u00a0Caregivers\u00a0in\u00a0Patient-Oriented\u00a0Research:\u00a0Mindfulness-Based Stress Reduction Retreat for Mothers of Pediatric Heart Transplant Recipients"},"content":{"rendered":"

Engaging\u00a0Caregivers\u00a0in\u00a0Patient-Oriented\u00a0Research:\u00a0Mindfulness-Based Stress Reduction Retreat for Mothers of Pediatric Heart Transplant Recipients<\/h4>\n

This research is driven by patient- and family-identified needs to support the quality of life and wellbeing of mothers of pediatric heart transplant recipients<\/span>.\u00a0 It\u00a0<\/span>leverages Mindfulness-Based Stress Reduction (MBSR), delivered\u00a0<\/span>at<\/span>\u00a0an ecological retreat, as an innovative intervention to meaningfully address the complexities of caregiving and caregiver burden. A mixed-methods design will be employed to examine potential changes in maternal coping styles, distress tolerance, quality of life and perceived social support following the intervention<\/span>\u00a0–\u00a0<\/span>a MBSR retreat<\/span>.\u00a0 The retreat will be<\/span>\u00a0compris<\/span>ed<\/span>\u00a0of mindfulness exercises such as circle sharing, deep relaxation, yoga and walking meditation.<\/span>\u00a0Guided by the experiential expertise of our patient partner, Joanna Mitchell, this research places a strong emphasis on patient- and family-centred care, targeting the intersection of maternal wellbeing and child health\u00a0<\/span>outcomes within pediatric transplantation.\u202f<\/span><\/span>\u00a0<\/span><\/em><\/p>\n

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Joanna Mitchell’s b<\/b>io<\/span><\/h5>\n

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Joanna Mitchell is the mother to 16-year-old Ryley who received a heart transplant at 7 months of age.\u00a0\u00a0Soon\u00a0after Ryley\u2019s transplant, the Mitchell Family\u00a0became involved as volunteers\u00a0with\u00a0the\u00a0Trillium Gift of Life\u00a0Network\u00a0to encourage others to consider organ donation\u00a0by sharing Ryley\u2019s\u00a0story.\u00a0\u00a0Joanna and Ryley were presented with the TGLN Board of Directors Champion Award in 2017 for their contribution to raising awareness for organ donation.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\n

\u00a0<\/span>When Ryley was 5, she participated in her first Canadian Transplant Games and the family became involved with the Canadian Transplant Association.\u00a0\u00a0With the CTA,\u00a0Joanna has helped to organize various events to promote both organ donation and healthy active living after transplantation.\u00a0 Joanna\u00a0has also worked\u00a0as\u00a0a\u00a0parent liaison to bring a pediatric and family perspective to the transplant games.\u00a0 She encourages connections of transplant families by facilitating various social media groups\u00a0and informal mentorship.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\n

\u00a0<\/span>Joanna became\u00a0a\u00a0patient caregiver partner\u00a0with\u00a0Canadian Donation and Transplantation Research Program more recently\u00a0with a focus on projects\u00a0related to\u00a0pediatrics and\u00a0the\u00a0mental health of\u00a0not only the transplant patient but the\u00a0family as a whole.<\/span>\u00a0<\/span><\/p>\n

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Samantha J. Anthony’s b<\/b>io<\/span><\/h5>\n

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Dr. Samantha J. Anthony is a Health Clinician Scientist in the Child Health Evaluative Sciences Program of the Research Institute at the Hospital for Sick Children. She has nearly 20 years of experience in the\u00a0SickKids\u00a0Transplant and Regenerative\u00a0Medicine Centre\u00a0as a Social Worker and is an Assistant Professor in the\u00a0Factor-Inwentash\u00a0Faculty of Social Work\u00a0at the\u00a0University of Toronto. Dr. Anthony is also an Investigator with the Canadian Donation and Transplantation Research Program.\u00a0<\/span>\u00a0<\/span><\/p>\n

\u00a0<\/span>Dr. Anthony has been recognized for her dedication to clinical practice and the application of research for improved patient outcomes.\u00a0Her program of research centres on establishing an evidence-based foundation for successful psychosocial adaptation and enhanced quality of life for individuals with chronic disease, with a specific focus on pediatric solid-organ transplantation. Dr. Anthony has\u00a0received national academic scholarships and has obtained competitive grants and research awards, including\u00a0funding from\u00a0Health Canada, CIHR, Canadian Child Health Clinician Scientist Program, Enduring Hearts, Kidney Foundation of Canada and The International Society for Heart and Lung Transplantation.\u00a0<\/span>\u00a0<\/span><\/p>\n","protected":false},"author":6,"template":"","class_list":["post-13677","spucpt","type-spucpt","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/spucpt\/13677","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/spucpt"}],"about":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/types\/spucpt"}],"author":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/users\/6"}],"wp:attachment":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/media?parent=13677"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}