{"id":32523,"date":"2025-06-23T10:31:27","date_gmt":"2025-06-23T14:31:27","guid":{"rendered":"https:\/\/cdtrp.ca\/?p=32523"},"modified":"2025-06-23T10:32:12","modified_gmt":"2025-06-23T14:32:12","slug":"world-sickle-cell-day-2025-interview-with-sylvia-okonofua","status":"publish","type":"post","link":"https:\/\/cdtrp.ca\/en\/world-sickle-cell-day-2025-interview-with-sylvia-okonofua\/","title":{"rendered":"World Sickle Cell Day 2025 &#8211; Interview with Sylvia Okonofua"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-1 hover-type-none\"><img decoding=\"async\" width=\"1600\" height=\"900\" title=\"World Sickle Cell Day 2025 (1)\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png\" alt class=\"lazyload img-responsive wp-image-32525\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271600%27%20height%3D%27900%27%20viewBox%3D%270%200%201600%20900%27%3E%3Crect%20width%3D%271600%27%20height%3D%27900%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-200x113.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-400x225.png 400w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-600x338.png 600w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-800x450.png 800w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1-1200x675.png 1200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/World-Sickle-Cell-Day-2025-1.png 1600w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 1200px\" \/><\/span><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-text fusion-text-1\"><h4><strong>World Sickle Cell Day 2025<\/strong><\/h4>\n<p>June 19 is World Sickle Cell Day, a time to raise awareness about the challenges faced by individuals living with sickle cell disease and to highlight the importance of equitable care. In honour of this day, CDTRP spoke with <strong>Sylvia Okonofua<\/strong>, founder and Executive Director of <strong>Black Donors Save Lives<\/strong>.<\/p>\n<p>In this interview, Sylvia shares:<\/p>\n<ul>\n<li>The mission and vision behind Black Donors Save Lives<\/li>\n<li>How health policy affects the diversity of donor registries<\/li>\n<li>Her advocacy journey and what continues to fuel her work<\/li>\n<li>Her hopes for the future of sickle cell care and the role of community-led change<\/li>\n<\/ul>\n<p>Through her insights, Sylvia reminds us that advancing donor equity is not just about increasing numbers \u2014 it\u2019s about restoring trust, transforming systems, and creating hope. We invite you to listen to the full interview below.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:600px;--awb-max-height:360px;--awb-align-self:center;--awb-width:100%;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:60%;\" ><iframe title=\"YouTube video player 1\" src=\"https:\/\/www.youtube.com\/embed\/oCVQepU8oQg?wmode=transparent&autoplay=0\" width=\"600\" height=\"360\" allowfullscreen allow=\"autoplay; fullscreen\"><\/iframe><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-2\"><p>We encourage you to learn more about sickle cell, and support organizations doing important work in the field.<\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-3\"><div class=\"av-special-heading av-lx9byntg-48a2a8b8f690730bf4e9eedb8730d4ea av-special-heading-h1 blockquote modern-quote modern-centered avia-builder-el-7 el_before_av_textblock avia-builder-el-first av-inherit-size\">\n<h5 class=\"av-special-heading-tag \">Black Donors Save Lives<\/h5>\n<\/div>\n<section class=\"av_textblock_section av-lx9cm0hh-945899c9436483f710618e3245b65581 \">\n<div class=\"avia_textblock\">\n<p>Black Donors Save Lives is a federal nonprofit organization that works to address racial disparity in blood, stem cell, and organ and tissue donor pools impacting patients from African, Caribbean and Black (ACB) communities.<\/p>\n<p><strong><a href=\"https:\/\/bdsl.ca\/\">Learn more<\/a><\/strong><\/p>\n<\/div>\n<\/section>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-2 hover-type-none\"><img decoding=\"async\" width=\"300\" height=\"300\" title=\"cropped-BDSL-Circular-Logo-Wineberry-300&#215;300\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png\" alt class=\"lazyload img-responsive wp-image-32529\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27300%27%20viewBox%3D%270%200%20300%20300%27%3E%3Crect%20width%3D%27300%27%20height%3D%27300%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1-200x200.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/cropped-BDSL-Circular-Logo-Wineberry-300x300-1.png 300w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 300px\" \/><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-4\"><div class=\"av-special-heading av-lx9byntg-48a2a8b8f690730bf4e9eedb8730d4ea av-special-heading-h1 blockquote modern-quote modern-centered avia-builder-el-7 el_before_av_textblock avia-builder-el-first av-inherit-size\">\n<h5 class=\"framer-text\">Sickle Cell Awareness Group of Ontario (SCAGO)<\/h5>\n<\/div>\n<section class=\"av_textblock_section av-lx9cm0hh-945899c9436483f710618e3245b65581 \">\n<div class=\"avia_textblock\">\n<p class=\"framer-text\">The Sickle Cell Awareness Group of Ontario (SCAGO) started\u00a0on June 14th, 2005\u00a0as the Seed of Life Philanthropic Organization (SOLPO) in memory of a brave young man\u2014<a class=\"framer-text\" href=\"https:\/\/sicklecellanemia.ca\/history\" target=\"_blank\" rel=\"noopener\">Sunday Afolabi<\/a>.\u00a0<br class=\"framer-text\" \/><br class=\"framer-text trailing-break\" \/><\/p>\n<p class=\"framer-text\">SCAGO is a leading charitable patient organization providing evidence-based support to families with children, adolescents, and adults, with sickle cell disease across the four regions of the province. It supports and engages in\u00a0research, health promotion, patient and care providers\u2019 education, community awareness, and the development of best practice guidelines.<\/p>\n<p><strong><a href=\"https:\/\/www.sicklecellanemia.ca\/\">Learn more<\/a><\/strong><\/p>\n<\/div>\n<\/section>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-image-element \" style=\"--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><span class=\" fusion-imageframe imageframe-none imageframe-3 hover-type-none\"><img decoding=\"async\" width=\"375\" height=\"95\" title=\"SCAGO\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png\" alt class=\"lazyload img-responsive wp-image-32527\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27375%27%20height%3D%2795%27%20viewBox%3D%270%200%20375%2095%27%3E%3Crect%20width%3D%27375%27%20height%3D%2795%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO-200x51.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2025\/06\/SCAGO.png 375w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, (max-width: 640px) 100vw, 375px\" \/><\/span><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_1_2 1_2 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:50%;--awb-margin-top-large:0px;--awb-spacing-right-large:3.84%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:3.84%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":8,"featured_media":32525,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,75],"tags":[],"class_list":["post-32523","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general","category-featured"],"_links":{"self":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/posts\/32523"}],"collection":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/comments?post=32523"}],"version-history":[{"count":7,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/posts\/32523\/revisions"}],"predecessor-version":[{"id":32536,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/posts\/32523\/revisions\/32536"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/media\/32525"}],"wp:attachment":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/media?parent=32523"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/categories?post=32523"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/tags?post=32523"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}