![](\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/11\/International-Forum-Publications-and-Summaries.png\")
<\/a><\/span><\/div>The Forum\u2019s publications and Domain summaries: enhancing organ and tissue donation systems<\/strong><\/h4>\nTo identify and address common challenges in deceased organ and tissue donation, Transplant Qu\u00e9bec and the Canadian Donation and Transplantation Research Program (CDTRP) organized The International Donation and Transplantation Legislative and Policy Forum<\/strong>. The Forum produced 94 evidence-informed expert consensus recommendations to improve organ and tissue donation and transplantation laws and policies. These aspirational recommendations can be adapted for use in donation and transplant systems in Canada and around the world. You can access the Forum\u2019s publications in Transplantation Direct below and download all Domain summaries.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/i>Access the publications<\/span><\/a><\/div><\/div><\/div><\/i>Download Domain Summaries<\/span><\/a><\/div><\/div><\/div><\/div><\/div><\/div><\/div>The CDTRP is leading knowledge mobilization efforts to support the implementation of recommendations. To stay informed about The Forum’s ongoing initiatives, we invite you to explore our revamped Forum website.<\/strong> This is where you can access direct links to The Forum’s publications, summaries of recommendations in each domain, fact sheets, and presentations by Dr. Matthew Weiss.<\/h5>\n<\/div><\/div><\/i>Access the website<\/span><\/a><\/div><\/div><\/div><\/div><\/div>DOMAIN 1: Baseline Ethical Principles<\/strong><\/span><\/h5>\nThe\u00a0Baseline Ethical Principles<\/em>\u00a0domain proposes an ethical framework to assist stakeholders and decision-makers in incorporating ethical principles into OTDT practice and policy to maintain public trust and integrity.<\/span>\u00a0<\/span><\/p>\nThe domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\nThe proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 2: Legislation and Policy<\/strong><\/span><\/h5>\nThe\u00a0Legislation and Policy<\/em>\u00a0domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 3: Organ Donation Organization Architecture<\/strong><\/span><\/h5>\nThe\u00a0Organ Donation Organization Architecture<\/em>\u00a0domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\nThe 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 4: Organ and Tissue Donation Consent Model and Intent to Donate Registries\u00a0<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\nInstead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 5: Living Donation<\/strong><\/span><\/h5>\nComing soon.<\/p>\n<\/div>
<\/div><\/div>DOMAIN 6: Tissue and Cell Donation<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Tissue and Cell Donation<\/span><\/i>\u00a0domain provides expert legislative and policy reform guidance. The 13 recommendations outlined in the chapter focus on (1) self-sufficiency of supply, (2) ethics, (3) quality and safety, and (4) innovation for non-profit organizations.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that legislation and policies impacting tissue and cell donation and transplantation vary significantly across jurisdictions, this field\u2019s issues warrant separate considerations from other challenges affecting OTDT systems. The recommendations are not intended to provide a prescriptive pathway for implementation. Instead, the recommendations provide a general framework for developing a fair, ethical, safe, and accessible system supporting patient outcomes and self-sufficiency.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 7: Research and Innovation in Organ Donation<\/strong><\/span><\/h5>\nThe\u00a0Research and Innovation in Organ Donation<\/em>\u00a0domain provides expert guidance on developing a high-performing and ethically robust deceased donation research framework. The 16 recommendations cover the areas of (1) patient, family, donor, and public involvement in research; (2) donor, surrogate, and recipient consent within a research ethics framework; and (3) data management.\u00a0<\/span>\u00a0<\/span><\/p>\nThe recommendations are intended to strengthen a jurisdiction\u2019s OTDT system while building and maintaining public trust. The domain followed the US National Academics of Science, Engineering, and Medicine report\u2019s goals of developing a robust and ethical deceased donation research framework.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div>
The CDTRP is leading knowledge mobilization efforts to support the implementation of recommendations. To stay informed about The Forum’s ongoing initiatives, we invite you to explore our revamped Forum website.<\/strong> This is where you can access direct links to The Forum’s publications, summaries of recommendations in each domain, fact sheets, and presentations by Dr. Matthew Weiss.<\/h5>\n<\/div><\/div><\/i>Access the website<\/span><\/a><\/div><\/div><\/div><\/div><\/div>DOMAIN 1: Baseline Ethical Principles<\/strong><\/span><\/h5>\nThe\u00a0Baseline Ethical Principles<\/em>\u00a0domain proposes an ethical framework to assist stakeholders and decision-makers in incorporating ethical principles into OTDT practice and policy to maintain public trust and integrity.<\/span>\u00a0<\/span><\/p>\nThe domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\nThe proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 2: Legislation and Policy<\/strong><\/span><\/h5>\nThe\u00a0Legislation and Policy<\/em>\u00a0domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 3: Organ Donation Organization Architecture<\/strong><\/span><\/h5>\nThe\u00a0Organ Donation Organization Architecture<\/em>\u00a0domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\nThe 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 4: Organ and Tissue Donation Consent Model and Intent to Donate Registries\u00a0<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\nInstead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 5: Living Donation<\/strong><\/span><\/h5>\nComing soon.<\/p>\n<\/div>
<\/div><\/div>DOMAIN 6: Tissue and Cell Donation<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Tissue and Cell Donation<\/span><\/i>\u00a0domain provides expert legislative and policy reform guidance. The 13 recommendations outlined in the chapter focus on (1) self-sufficiency of supply, (2) ethics, (3) quality and safety, and (4) innovation for non-profit organizations.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that legislation and policies impacting tissue and cell donation and transplantation vary significantly across jurisdictions, this field\u2019s issues warrant separate considerations from other challenges affecting OTDT systems. The recommendations are not intended to provide a prescriptive pathway for implementation. Instead, the recommendations provide a general framework for developing a fair, ethical, safe, and accessible system supporting patient outcomes and self-sufficiency.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 7: Research and Innovation in Organ Donation<\/strong><\/span><\/h5>\nThe\u00a0Research and Innovation in Organ Donation<\/em>\u00a0domain provides expert guidance on developing a high-performing and ethically robust deceased donation research framework. The 16 recommendations cover the areas of (1) patient, family, donor, and public involvement in research; (2) donor, surrogate, and recipient consent within a research ethics framework; and (3) data management.\u00a0<\/span>\u00a0<\/span><\/p>\nThe recommendations are intended to strengthen a jurisdiction\u2019s OTDT system while building and maintaining public trust. The domain followed the US National Academics of Science, Engineering, and Medicine report\u2019s goals of developing a robust and ethical deceased donation research framework.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div>
DOMAIN 1: Baseline Ethical Principles<\/strong><\/span><\/h5>\nThe\u00a0Baseline Ethical Principles<\/em>\u00a0domain proposes an ethical framework to assist stakeholders and decision-makers in incorporating ethical principles into OTDT practice and policy to maintain public trust and integrity.<\/span>\u00a0<\/span><\/p>\nThe domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\nThe proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 2: Legislation and Policy<\/strong><\/span><\/h5>\nThe\u00a0Legislation and Policy<\/em>\u00a0domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 3: Organ Donation Organization Architecture<\/strong><\/span><\/h5>\nThe\u00a0Organ Donation Organization Architecture<\/em>\u00a0domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\nThe 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 4: Organ and Tissue Donation Consent Model and Intent to Donate Registries\u00a0<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\nInstead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 5: Living Donation<\/strong><\/span><\/h5>\nComing soon.<\/p>\n<\/div>
<\/div><\/div>DOMAIN 6: Tissue and Cell Donation<\/strong><\/span><\/h5>\nThe<\/span>\u00a0Tissue and Cell Donation<\/span><\/i>\u00a0domain provides expert legislative and policy reform guidance. The 13 recommendations outlined in the chapter focus on (1) self-sufficiency of supply, (2) ethics, (3) quality and safety, and (4) innovation for non-profit organizations.\u00a0<\/span>\u00a0<\/span><\/p>\nGiven that legislation and policies impacting tissue and cell donation and transplantation vary significantly across jurisdictions, this field\u2019s issues warrant separate considerations from other challenges affecting OTDT systems. The recommendations are not intended to provide a prescriptive pathway for implementation. Instead, the recommendations provide a general framework for developing a fair, ethical, safe, and accessible system supporting patient outcomes and self-sufficiency.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div><\/div><\/div>DOMAIN 7: Research and Innovation in Organ Donation<\/strong><\/span><\/h5>\nThe\u00a0Research and Innovation in Organ Donation<\/em>\u00a0domain provides expert guidance on developing a high-performing and ethically robust deceased donation research framework. The 16 recommendations cover the areas of (1) patient, family, donor, and public involvement in research; (2) donor, surrogate, and recipient consent within a research ethics framework; and (3) data management.\u00a0<\/span>\u00a0<\/span><\/p>\nThe recommendations are intended to strengthen a jurisdiction\u2019s OTDT system while building and maintaining public trust. The domain followed the US National Academics of Science, Engineering, and Medicine report\u2019s goals of developing a robust and ethical deceased donation research framework.<\/span>\u00a0<\/span><\/p>\nAccess the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div>
The domain acknowledged the importance of international standards of baseline ethical principles within OTDT regulations, policies, and legislation, as outlined in the World Health Organization (WHO) Guiding Principles, the Declaration of Istanbul, and the Barcelona Principles. What is less well-established is how to evaluate newly proposed practices or programs according to these principles.\u00a0<\/span>\u00a0<\/span><\/p>\n The proposed framework will assist those responsible for making and approving ethical policy decisions consistent with the established international agreements, declarations, and resolutions on the ethical underpinnings of an OTDT system.<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div> The\u00a0Legislation and Policy<\/em>\u00a0domain provides expert guidance for legislative and policy reform. The 12 recommendations outlined in the chapter focus on (1) legal definitions and legislative scope; (2) consent requirements for donation; (3) allocation of organs and tissue; (4) operation of OTDT systems; and (5) travel for transplant and organ trafficking.\u00a0<\/span>\u00a0<\/span><\/p>\n Given that OTDT systems vary in how they are regulated, and local cultural, social, and economic factors impact law and policy, the 12 recommendations address fundamental issues in OTDT. Thus, the recommendations could apply wholly or in part to any jurisdiction developing or reforming its system.\u00a0<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div> The\u00a0Organ Donation Organization Architecture<\/em>\u00a0domain provides expert guidance on the components of an effective organ donation organization (ODO), its relationship with OTDT stakeholders, and markers of best practices supporting an effective donation and transplantation care pathway and continuous improvement.<\/span>\u00a0<\/span><\/p>\n The 33 recommendations represent the foundational markers of a safe, fair, and transparent system that maximizes the number of organs available for transplantation and maintains public trust across all stages of the care pathway.<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div> The<\/span>\u00a0Organ and Tissue Donation Consent Model and Intent to Donate Registries<\/span><\/i>\u00a0domain provides expert guidance for jurisdictions implementing or reforming their consent model. The consent model working group does not recommend one type of consent model over another.\u00a0<\/span>\u00a0<\/span><\/p>\n Instead, the 11 recommendations outlined in this domain discuss\u00a0<\/span>the main factors influencing the success of a consent model. These factors include the type of consent model (opt-in vs opt-out), donor registry, marketing campaigns\/public education, and the education of healthcare professionals.<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div> Coming soon.<\/p>\n<\/div> The<\/span>\u00a0Tissue and Cell Donation<\/span><\/i>\u00a0domain provides expert legislative and policy reform guidance. The 13 recommendations outlined in the chapter focus on (1) self-sufficiency of supply, (2) ethics, (3) quality and safety, and (4) innovation for non-profit organizations.\u00a0<\/span>\u00a0<\/span><\/p>\n Given that legislation and policies impacting tissue and cell donation and transplantation vary significantly across jurisdictions, this field\u2019s issues warrant separate considerations from other challenges affecting OTDT systems. The recommendations are not intended to provide a prescriptive pathway for implementation. Instead, the recommendations provide a general framework for developing a fair, ethical, safe, and accessible system supporting patient outcomes and self-sufficiency.\u00a0\u00a0<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div> The\u00a0Research and Innovation in Organ Donation<\/em>\u00a0domain provides expert guidance on developing a high-performing and ethically robust deceased donation research framework. The 16 recommendations cover the areas of (1) patient, family, donor, and public involvement in research; (2) donor, surrogate, and recipient consent within a research ethics framework; and (3) data management.\u00a0<\/span>\u00a0<\/span><\/p>\n The recommendations are intended to strengthen a jurisdiction\u2019s OTDT system while building and maintaining public trust. The domain followed the US National Academics of Science, Engineering, and Medicine report\u2019s goals of developing a robust and ethical deceased donation research framework.<\/span>\u00a0<\/span><\/p>\n Access the publication<\/span><\/span><\/a>\u00a0|\u00a0Download Domain Summary<\/a><\/strong><\/p>\n<\/div>DOMAIN 2: Legislation and Policy<\/strong><\/span><\/h5>\n
DOMAIN 3: Organ Donation Organization Architecture<\/strong><\/span><\/h5>\n
DOMAIN 4: Organ and Tissue Donation Consent Model and Intent to Donate Registries\u00a0<\/strong><\/span><\/h5>\n
DOMAIN 5: Living Donation<\/strong><\/span><\/h5>\n
DOMAIN 6: Tissue and Cell Donation<\/strong><\/span><\/h5>\n
DOMAIN 7: Research and Innovation in Organ Donation<\/strong><\/span><\/h5>\n