{"id":24321,"date":"2023-06-20T14:17:26","date_gmt":"2023-06-20T19:17:26","guid":{"rendered":"https:\/\/cdtrp.ca\/?p=24321"},"modified":"2023-06-21T10:50:50","modified_gmt":"2023-06-21T15:50:50","slug":"10th-anniversary-celebrations-edition-2","status":"publish","type":"post","link":"https:\/\/cdtrp.ca\/en\/10th-anniversary-celebrations-edition-2\/","title":{"rendered":"CDTRP 10th Anniversary Celebrations – Second Edition"},"content":{"rendered":"

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This is the second edition of our special series to mark The Canadian Donation and Transplantation Research Program\u2019s 10th Anniversary!<\/span><\/p>\n

Learn more about the people and projects that have left their mark on the network!<\/span><\/strong><\/p><\/h4><\/div>

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The Canadian Donation and Transplantation Research Program is celebrating its 10th Anniversary, and to mark this special occasion, we want to highlight the people and projects that have made a significant impact on the network.<\/p>\n

Patient, family, and donor partners: nothing about us without us<\/strong><\/span><\/h3>\n

Since its inception, the Canadian Donation and Transplantation Research Program (CDTRP) has been fortunate to work with patient, family and donor (PFD) partners who have been involved every step of the way – from the initial stages of research to the dissemination of findings. Upholding the principle of patient engagement, the CDTRP has created a place for them in all stages of the research process, ensuring that their needs and perspectives are central to the work being done.<\/p>\n

One important initiative core to this commitment is the creation of the Patient Researcher Partnership Platform in 2016. This platform brings patients and researchers together to develop research projects that respond to the needs of patients and families. The platform has continued to evolve over the years, to give a special place to all patient, family and donor partners in the research process.<\/p>\n

By working closely with patients, families and donors, the CDTRP has been successful in ensuring that its research truly focuses on improving the lives of those affected by donation and transplantation. This has been a central priority for the Program and its partners since the beginning, and it remains a key focus for the future.<\/p>\n

As we celebrate 10 years, it is important to recognize the vital contributions of those who have made this work possible. Through their dedication and collaboration, they have helped to advance our understanding of donation and transplantation and improve outcomes for patients and families across Canada.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

Patient Voices: Sandra Holdsworth and Sylvain B\u00e9dard’s CDTRP Story<\/strong><\/span><\/h4>\n

Meet Sandra Holdsworth and Sylvain B\u00e9dard, two long-time patient partners who have been with us since the very beginning. In these interviews, they share their experiences with the network and discuss the impact it has had on their patient journey. Sandra and Sylvain also reflect on their favorite memories from CDTRP’s Annual Scientific Meetings and share their hopes for the future of patient engagement in research. Join us in learning from these inspiring individuals and gaining a deeper understanding of the vital role that patient partners play in shaping healthcare research.<\/span><\/p>\n<\/div><\/div><\/div>

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About Sandra Holdsworth<\/strong><\/h5>\n

Sandra Holdsworth worked in banking for 30 years before, she received a liver transplant in 1997, following years of undiagnosed rare liver disease and Crohn\u2019s disease. She now lives with a permanent ostomy, chronic kidney disease, and PTSD. Sandra is a Patient Partner co-lead with the Canadian Donation Transplantation Research Program (CDTRP), focusing on long term outcomes, including, exercise, nutrition, and mental health. She is also an advocate for organ and tissue donation, mentoring others on their healthcare journeys.<\/p>\n<\/div><\/div><\/div>