{"id":7003,"date":"2020-09-14T19:54:12","date_gmt":"2020-09-14T19:54:12","guid":{"rendered":"https:\/\/cdtrp.ca\/?page_id=7003"},"modified":"2021-06-18T10:21:54","modified_gmt":"2021-06-18T15:21:54","slug":"programday1","status":"publish","type":"page","link":"https:\/\/cdtrp.ca\/en\/programday1\/","title":{"rendered":"Program Day I – Thursday, October 15"},"content":{"rendered":"
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Please note the following program was carried out on October 15, 2020.<\/strong><\/h5>\n
\u00a0<\/strong><\/h6>\n<\/div>

<\/i><\/i><\/span>Morning - Family and Caregivers<\/span><\/a><\/h4><\/div>
\n
11:00 – 11:15 – Welcome Remarks and Overview of the Event
\n<\/strong><\/h6>\n

11:15 – 11:25 – What it means to be a Patient, Family and Donor Research Partner – View Recording<\/a><\/strong>
\nDr. Marie-Chantal Fortin, CDTRP PFD Platform<\/a> Lead and Sylvain B\u00e9dard* , CDTRP PFD Co-Lead
\nIn this introduction, you will learn what it means to be a part of a research project as a patient, family or donor within the CDTRP.<\/em><\/p>\n

11:25 – 11:40 – Keynote: Projet Laurent – View Recording<\/a><\/strong>
\nDr. H\u00e9lene Tessier*, Laurent Tessier* and Dr. M\u00e9lanie Dieud\u00e9
\nEnjoy a review of Projet Laurent, a research initiative that stemmed from a pediatric patient and his mother about the importance of companionship and a pet during recovery from transplant.<\/em><\/p>\n

11:40 – 11:55 – Panel and Q&A: Is there a place in research for patient, family and donor initiatives? <\/strong>
\nDr. H\u00e9lene Tessier*, Sylvain B\u00e9dard* and Dr. M\u00e9lanie Dieud\u00e9
\nJoin in the discussion as we discuss patient-led and initiated research from a patient, family and donor standpoint.<\/em><\/p>\n

11:55 – 12:00 – Break<\/strong><\/h6>\n

12:00 – 12:15 – Research 101: Family-Caregiver Focus – View Recording<\/a><\/strong>
\nSarah Pol and Dr. Sonny Dhanani
\nListen to a clinician and a research assistant discuss the importance of having a family-caregiver input in guiding a research project for successful outcomes.<\/em><\/p>\n

12:15 – 12:30 – My Experience in Research and Q&A – View Recording<\/a><\/strong>
\nJoanna Mitchell* and Heather Talbot*
\nLearn from two CDTRP Patient, Family and Donor Research partners discuss their experience as donor family and caregiver.<\/em><\/p>\n

12:30 – 12:45 – Care Reform during COVID-19: Engaging with Patient, Family and Donor Experiences – View Recording<\/a>
\n<\/strong>Anna Horton (CDTRP Trainee)
\n<\/strong><\/p>\n

12:45 – 13:00 – Closing Remarks and End of Block I<\/strong><\/h6>\n

*Patient, Family and Donor Representative<\/span><\/em><\/p>\n

View Transcript<\/a><\/p>\n

Please note that transcripts are in .vtt format and are auto-scripted. There may be discrepancies.<\/p>\n<\/div><\/div><\/div>

<\/i><\/i><\/span>Afternoon - Transplant Recipients<\/span><\/a><\/h4><\/div>
\n
14:00 – 14:05 – Welcome back<\/strong><\/h6>\n

14:05 – 14:40 – Keynote Panel and Q&A: The Impact of COVID-19 on the Transplant Recipient Community – View Recording<\/a><\/strong>
\nDr. James Lan, Dr. Isabelle Dor\u00e9, Sherrie Logan* and Elizabeth Ingram*
\nListen and learn from two researchers and two patient and family research partners share their experiences of the impact of COVID-19 on the transplant recipient community and their families. Audience discussion and feedback will be welcome!<\/em><\/p>\n

Supported by Astellas Pharma Canada, Inc.\u00a0 \"\"<\/a><\/p>\n

14:40 – 14:45 – Break<\/strong><\/h6>\n

14:45 – 15:00 – AOG: A Community-based Initiative and Q&A – View Recording<\/a><\/strong>
\nLinda Powell* and Murray Wilson*
\nEnjoy this presentation of a patient-led organizational and economic assessment being conducted within Alberta.<\/em><\/p>\n

15:00 – 15:25 – Research 101: Transplant Recipient Focus and Q&A – View Recording<\/a><\/strong>
\nLiz Schick, Brenda Brown and Donna Hart*
\nRepresentatives from the Canadian Transplant Association and World Transplant Games Federation along with athlete and transplant recipient, Donna Hart, will discuss the history and anecdotal evidence and examples of how sport facilitates transplant health.<\/em><\/p>\n

15:25 – 15:45 – My Experience in Research: Peer Review, Knowledge Translation and Training and Q&A – View Recording<\/a><\/strong>
\nLarry Worfolk*, Shelby Gielen* and Dr. Leanne Stalker
\nEnjoy this moderated session of two patient, family and donor research partners who will discuss their roles in research and how their own knowledge has grown.<\/em><\/p>\n

15:45 – 16:00 – Can-Restore Intro and Dance Break
\n<\/strong>If you wish to see the dance series, access the videos here.<\/a>
\nDr. Sunita Mathur, Dr. Tania Janaudis-Ferreira and Manoela Ferreira (CDTRP Trainee)
\nBust some moves with us!<\/em><\/p>\n

16:00 – 16:30 – Panel and Q&A – Deemed Consent: Canada’s Vantage Point – View Recording<\/a><\/strong>
\nDr. Matthew Weiss, Alessandro Marcon and Hans Vorster*
\nSince Nova Scotia’s new legislation of deemed consent, this panel of experts will discuss the overall objectives and evaluation of public opinion being conducted.<\/em><\/p>\n

16:30 – 16:50 – An Introduction to Health Canada ODT Collaborative and Patient Advocate Advisory Committee and Q&A – View Recording<\/a><\/strong>
\nCindy Moriarty, Randy Spensley* and Lydia Lauder
\nEnjoy a brief introduction of Health Canada’s initiatives involved in donation and transplantation.<\/em><\/p>\n

16:50 – 17:00 – Thank you and closing remarks<\/strong><\/h6>\n

*Patient, Family and Donor Representative<\/span><\/em><\/p>\n

View Transcript<\/a><\/p>\n

Please note that transcripts are in .vtt format and are auto-scripted. There may be discrepancies.<\/p>\n<\/div><\/div><\/div><\/div><\/div>

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