{"id":22510,"date":"2023-05-15T16:06:40","date_gmt":"2023-05-15T21:06:40","guid":{"rendered":"https:\/\/cdtrp.ca\/?page_id=22510"},"modified":"2023-06-15T09:57:32","modified_gmt":"2023-06-15T14:57:32","slug":"program","status":"publish","type":"page","link":"https:\/\/cdtrp.ca\/en\/events\/pfdrf2023\/program\/","title":{"rendered":"Program &#8211; Patient, Family and Donor Research Forum 2023"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-no-small-visibility fusion-no-medium-visibility\" style=\"--awb-background-position:left top;--awb-border-sizes-top:0px;--awb-border-sizes-bottom:0px;--awb-border-sizes-left:0px;--awb-border-sizes-right:0px;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last fusion-no-small-visibility fusion-no-medium-visibility\" style=\"--awb-padding-top:6rem;--awb-padding-right:3rem;--awb-padding-bottom:6rem;--awb-padding-left:3rem;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-size:cover;--awb-box-shadow:0px 0px 25px 0px rgba(0,0,0,0.5);;--awb-margin-top:-12rem;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-column-wrapper-legacy\"><div class=\"fusion-image-element fusion-image-align-center in-legacy-container\" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><div class=\"imageframe-align-center\"><span class=\" fusion-imageframe imageframe-dropshadow imageframe-1 hover-type-none\" style=\"-webkit-box-shadow: 3px 3px 7px rgba(0,0,0,0.3);box-shadow: 3px 3px 7px rgba(0,0,0,0.3);\"><img decoding=\"async\" width=\"1024\" height=\"341\" title=\"PFD Forum 2023 &#8211; Website Program\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-1024x341.png\" alt class=\"lazyload img-responsive wp-image-23441\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271500%27%20height%3D%27500%27%20viewBox%3D%270%200%201500%20500%27%3E%3Crect%20width%3D%271500%27%20height%3D%27500%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-200x67.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-400x133.png 400w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-600x200.png 600w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-800x267.png 800w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-1200x400.png 1200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program.png 1500w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, 1200px\" \/><\/span><\/div><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-text fusion-text-1\"><p style=\"text-align: left;\">The Forum focused on capacity building in patient engagement for researchers, patient, family &amp; donor partners, and trainees through a mix of presentations, workshops, and priority-setting discussions.<\/p>\n<\/div><div class=\"fusion-text fusion-text-2\"><h5 class=\"fusion-responsive-typography-calculated\" data-fontsize=\"20\" data-lineheight=\"30px\"><strong>Learning outcomes were:<\/strong><\/h5>\n<\/div><ul style=\"--awb-line-height:28.9px;--awb-icon-width:28.9px;--awb-icon-height:28.9px;--awb-icon-margin:11.9px;--awb-content-margin:40.8px;--awb-circlecolor:#abb562;--awb-circle-yes-font-size:14.96px;\" class=\"fusion-checklist fusion-checklist-1 fusion-checklist-default type-icons\"><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<p>Building skills and resources to enhance the donation and transplantation research community\u2019s capacity for patient engagement during project development and research execution;<\/p>\n<\/div><\/li><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<p>Developing and sharing practical approaches to enhance equity, diversity and inclusion in patient engagement and research training within the Canadian donation and transplantation network;<\/p>\n<\/div><\/li><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<div class=\"fusion-li-item-content\">\n<p class=\"fusion-responsive-typography-calculated\" data-pm-slice=\"1 1 &#091;\" data-fontsize=\"16\" data-lineheight=\"24px\">Understanding emerging best practices for integrating PFDs in knowledge mobilization and sharing the knowledge developed with the broader research community.<\/p>\n<\/div>\n<\/div><\/li><\/ul><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-aligncenter\"><a class=\"fusion-button button-flat fusion-button-default-size button-custom fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" style=\"--button_accent_color:#ffffff;--button_border_color:#ffffff;--button_accent_hover_color:#ffffff;--button_border_hover_color:#ffffff;--button_gradient_top_color:#d3593d;--button_gradient_bottom_color:#d3593d;--button_gradient_top_color_hover:#d3593d;--button_gradient_bottom_color_hover:#d3593d;--button_text_transform:uppercase;\" target=\"_self\" href=\"https:\/\/www.youtube.com\/playlist?list=PLhBJGRs7ZhR_ULdgnG0p8EtfMlvrIpGvw\"><i class=\"fa-video fas button-icon-left\" aria-hidden=\"true\"><\/i><span class=\"fusion-button-text\">Check out recordings<\/span><\/a><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-no-medium-visibility fusion-no-large-visibility\" style=\"--awb-background-position:left top;--awb-border-sizes-top:0px;--awb-border-sizes-bottom:0px;--awb-border-sizes-left:0px;--awb-border-sizes-right:0px;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last fusion-no-large-visibility\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-column-wrapper-legacy\"><div class=\"fusion-image-element fusion-image-align-center in-legacy-container\" style=\"text-align:center;--awb-caption-title-font-family:var(--h2_typography-font-family);--awb-caption-title-font-weight:var(--h2_typography-font-weight);--awb-caption-title-font-style:var(--h2_typography-font-style);--awb-caption-title-size:var(--h2_typography-font-size);--awb-caption-title-transform:var(--h2_typography-text-transform);--awb-caption-title-line-height:var(--h2_typography-line-height);--awb-caption-title-letter-spacing:var(--h2_typography-letter-spacing);\"><div class=\"imageframe-align-center\"><span class=\" fusion-imageframe imageframe-dropshadow imageframe-2 hover-type-none\" style=\"-webkit-box-shadow: 3px 3px 7px rgba(0,0,0,0.3);box-shadow: 3px 3px 7px rgba(0,0,0,0.3);\"><img decoding=\"async\" width=\"1024\" height=\"341\" title=\"PFD Forum 2023 &#8211; Website Program\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-1024x341.png\" alt class=\"lazyload img-responsive wp-image-23441\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271500%27%20height%3D%27500%27%20viewBox%3D%270%200%201500%20500%27%3E%3Crect%20width%3D%271500%27%20height%3D%27500%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-200x67.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-400x133.png 400w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-600x200.png 600w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-800x267.png 800w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program-1200x400.png 1200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2023\/05\/PFD-Forum-2023-Website-Program.png 1500w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 1024px) 100vw, 1200px\" \/><\/span><\/div><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-text fusion-text-3\"><p style=\"text-align: left;\">The Forum focused on capacity building in patient engagement for researchers, patient, family &amp; donor partners, and trainees through a mix of presentations, workshops, and priority-setting discussions.<\/p>\n<\/div><div class=\"fusion-text fusion-text-4\"><h5 class=\"fusion-responsive-typography-calculated\" data-fontsize=\"20\" data-lineheight=\"30px\"><strong>Learning outcomes were:<\/strong><\/h5>\n<\/div><ul style=\"--awb-line-height:28.9px;--awb-icon-width:28.9px;--awb-icon-height:28.9px;--awb-icon-margin:11.9px;--awb-content-margin:40.8px;--awb-circlecolor:#abb562;--awb-circle-yes-font-size:14.96px;\" class=\"fusion-checklist fusion-checklist-2 fusion-checklist-default type-icons\"><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<p>Building skills and resources to enhance the donation and transplantation research community\u2019s capacity for patient engagement during project development and research execution;<\/p>\n<\/div><\/li><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<p>Developing and sharing practical approaches to enhance equity, diversity and inclusion in patient engagement and research training within the Canadian donation and transplantation network;<\/p>\n<\/div><\/li><li class=\"fusion-li-item\" style=\"\"><span class=\"icon-wrapper circle-yes\"><i class=\"fusion-li-icon fa-arrow-right fas\" aria-hidden=\"true\"><\/i><\/span><div class=\"fusion-li-item-content\">\n<div class=\"fusion-li-item-content\">\n<p class=\"fusion-responsive-typography-calculated\" data-pm-slice=\"1 1 &#091;\" data-fontsize=\"16\" data-lineheight=\"24px\">Understanding emerging best practices for integrating PFDs in knowledge mobilization and sharing the knowledge developed with the broader research community.<\/p>\n<\/div>\n<\/div><\/li><\/ul><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-aligncenter\"><a class=\"fusion-button button-flat fusion-button-default-size button-custom fusion-button-default button-2 fusion-button-default-span fusion-button-default-type\" style=\"--button_accent_color:#ffffff;--button_border_color:#ffffff;--button_accent_hover_color:#ffffff;--button_border_hover_color:#ffffff;--button_gradient_top_color:#d3593d;--button_gradient_bottom_color:#d3593d;--button_gradient_top_color_hover:#d3593d;--button_gradient_bottom_color_hover:#d3593d;--button_text_transform:uppercase;\" target=\"_self\" href=\"https:\/\/www.youtube.com\/playlist?list=PLhBJGRs7ZhR_ULdgnG0p8EtfMlvrIpGvw\"><i class=\"fa-video fas button-icon-left\" aria-hidden=\"true\"><\/i><span class=\"fusion-button-text\">Check out recordings<\/span><\/a><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-5\"><h5 style=\"text-align: center;\">We thank\u00a0<strong>AstraZeneca<\/strong> for sponsoring this event.<\/h5>\n<p><img decoding=\"async\" class=\"lazyload  wp-image-19392 aligncenter\" src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca-300x75.png\" data-orig-src=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca-300x75.png\" alt=\"\" width=\"260\" height=\"65\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27260%27%20height%3D%2765%27%20viewBox%3D%270%200%20260%2065%27%3E%3Crect%20width%3D%27260%27%20height%3D%2765%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca-200x50.png 200w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca-300x75.png 300w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca-400x100.png 400w, https:\/\/cdtrp.ca\/wp-content\/uploads\/2022\/09\/AstraZeneca.png 449w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 260px) 100vw, 260px\" \/><\/p>\n<\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><div class=\"fusion-separator-border sep-single sep-solid\" style=\"--awb-height:20px;--awb-amount:20px;border-color:#e0dede;border-top-width:1px;\"><\/div><\/div><div class=\"fusion-text fusion-text-6\"><h5 style=\"text-align: left;\"><span style=\"color: #5d91b4;\"><strong>This year&#8217;s rich program was developed by a diverse planning committee that included:<\/strong><\/span><\/h5>\n<h6 style=\"text-align: left;\"><strong>Co-Chairs:<\/strong><\/h6>\n<ul>\n<li><strong><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/strong> | Patient Partner (Themes 1 &amp; 2)<\/li>\n<li><strong><a href=\"#\" class=\"spu-open-16609\">Dr. Ruth Sapir-Pichhadze<\/a><\/strong> | Canadian Society of Transplantation Representative (Theme 4)<\/li>\n<\/ul>\n<h6><strong>Planning Committee:<\/strong><\/h6>\n<ul>\n<li><strong><a href=\"#\" class=\"spu-open-16604\">Sarah Douglas<\/a><\/strong> | Health Canada: <span class=\"TextRun BCX0 SCXW48403327\" lang=\"EN-CA\" xml:lang=\"EN-CA\" data-contrast=\"none\"><span class=\"NormalTextRun BCX0 SCXW48403327\">Organ Donation and Transplantation Collaborative Representative<\/span><\/span><\/li>\n<li><strong><a href=\"#\" class=\"spu-open-22237\">Jennifer Kingdon<\/a><\/strong> | Patient Partner (Theme 5)<\/li>\n<li><strong><a href=\"#\" class=\"spu-open-22239\">Hannah Murray<\/a><\/strong> |National Institute for Health and Care Research (UK) Representative<\/li>\n<li><strong><a href=\"#\" class=\"spu-open-22233\">Amy Thachil<\/a><\/strong> | Trainee (Theme 4)<\/li>\n<li><strong><a href=\"#\" class=\"spu-open-22234\">Lindsay Thompson<\/a><\/strong> | Patient Partner (Themes 3 &amp; 4)<\/li>\n<li><strong><a href=\"#\" class=\"spu-open-22238\">Chloe Wong-Mersereau<\/a><\/strong> | Trainee (Theme 1)<\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-4 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-background-color:#abb562;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\"><h3 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:26.25;line-height:1.5;\"><span style=\"color: #333333;\"><strong>THURSDAY, JUNE 8, 2023<\/strong><\/span><\/h3><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-5 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><span style=\"color: #5d91b4;\"><strong>Block 1 &#8211; Integrating Patients, Families and Donors During Research Question and Funding Development<\/strong><\/span><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-1\"><div class=\"fusion-panel panel-default panel-77bbcfc3feefc2dfe fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_77bbcfc3feefc2dfe\"><a aria-expanded=\"false\" aria-controls=\"77bbcfc3feefc2dfe\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-1\" data-target=\"#77bbcfc3feefc2dfe\" href=\"#77bbcfc3feefc2dfe\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:00 - 11:15 | Opening Remarks<\/span><\/a><\/h4><\/div><div id=\"77bbcfc3feefc2dfe\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_77bbcfc3feefc2dfe\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p>Opening remarks from Forum&#8217;s Co-Chairs<\/p>\n<ul>\n<li><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-16609\">Dr. Ruth Sapir-Pichhadze<\/a><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-efd7fad891f4da4ee fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_efd7fad891f4da4ee\"><a aria-expanded=\"false\" aria-controls=\"efd7fad891f4da4ee\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-1\" data-target=\"#efd7fad891f4da4ee\" href=\"#efd7fad891f4da4ee\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:15 - 11:45 | Undertaking research with First Nations, Metis and Inuit peoples: what researchers need to know about research governance and Indigenous patient engagement<\/span><\/a><\/h4><\/div><div id=\"efd7fad891f4da4ee\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_efd7fad891f4da4ee\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Undertaking research with First Nations, Metis and Inuit peoples: what researchers need to know about research governance and Indigenous patient engagement<\/strong> | 20-minutes presentation &amp; 10-minute Q&amp;A<\/h5>\n<h6><strong>Speaker:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-19894\">Dr. Caroline Tait<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/li>\n<\/ul>\n<h6><strong>Description<\/strong><\/h6>\n<p>This presentation will focus on providing guidance to researchers on ethical research practices and respectful engagement with First Nations, Metis, and Inuit (FNMI) peoples in Canada. It will outline the unique histories and cultures of FNMI peoples and how they relate to research practices along with the importance of research governance and Indigenous patient engagement, with examples and case studies used to highlight successful engagement strategies. Ultimately, this presentation will provide valuable knowledge and tools for researchers to undertake ethical and respectful research with FNMI communities.<\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_42846\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/Z59OMiTWVGU?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-b96b51682ab705c0b fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_b96b51682ab705c0b\"><a aria-expanded=\"false\" aria-controls=\"b96b51682ab705c0b\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-1\" data-target=\"#b96b51682ab705c0b\" href=\"#b96b51682ab705c0b\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:45 - 12:15 | Patient &amp; Public Partners in Research Prioritisation: Experiences of the BTRU in ODT<\/span><\/a><\/h4><\/div><div id=\"b96b51682ab705c0b\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_b96b51682ab705c0b\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Patient &amp; Public Partners in Research Prioritisation: Experiences of the BTRU in ODT | <\/strong>20-minute presentation + 10-minute Q&amp;A<\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22239\">Hannah Murray<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-24023\">John Fuller<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/li>\n<\/ul>\n<h6><strong>Description<\/strong><\/h6>\n<p>The presentation will focus on the involvement of patients and the public in research prioritization for organ donation and transplantation. The presenter will the importance of engaging with patients and the public to ensure that research projects are aligned with their needs and values. Case studies and real-life examples are shared to demonstrate the effectiveness of this approach. Ultimately, the presentation provides insights and tools for researchers to engage with patients and the public in a meaningful and effective way, producing more relevant and impactful research outcomes.<\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_53023\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/4f4m_g_jZnE?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><strong>12:15 &#8211; 12:25 | BREAK<\/strong><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-2\"><div class=\"fusion-panel panel-default panel-18496945c4954ef68 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_18496945c4954ef68\"><a aria-expanded=\"false\" aria-controls=\"18496945c4954ef68\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-2\" data-target=\"#18496945c4954ef68\" href=\"#18496945c4954ef68\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">12:25 - 12:45 | Navigating Research NET<\/span><\/a><\/h4><\/div><div id=\"18496945c4954ef68\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_18496945c4954ef68\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Navigating Research NET | <\/strong>20-minute presentation<\/h5>\n<h6><strong>Speaker:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-13687\">Manuel Escoto<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22234\">Lindsay Thompson<\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>This presentation will introduce you to the core elements required to meaningfully integrate Patient, Family, and Donor partners into your grant applications. The goal is to prepare researchers and PFD partners with an understanding of how to navigate ResearchNet, attain your CIHR Pin, complete the Equity and Diversity questionnaire, and register &amp; complete the Canadian Commons CV. By the end of this workshop, researchers will understand the steps required to add PFD partners as grant applicants and PFD partners will have the tools to complete their profiles.<\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_90674\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/jjUjqLhKTNo?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-42868e9e7db86ca83 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_42868e9e7db86ca83\"><a aria-expanded=\"false\" aria-controls=\"42868e9e7db86ca83\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-2\" data-target=\"#42868e9e7db86ca83\" href=\"#42868e9e7db86ca83\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">12:45 - 13:05 | Best practices in involving patient partners in grant applications<\/span><\/a><\/h4><\/div><div id=\"42868e9e7db86ca83\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_42868e9e7db86ca83\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Best practices in involving patient partners in grant applications | <\/strong>20-minute presentation<\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-13689\">Dr. Marie-Chantal Fortin<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23646\">Paul Cormier<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22234\">Lindsay Thompson<\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>The presentation will cover topics such as the importance of involving patient partners in the grant application process, how to identify and recruit patient partners, strategies for collaborating with patient partners, and best practices for ensuring that patient partners&#8217; perspectives and needs are adequately incorporated into the grant application. Additionally, the presentation may discuss the evaluation of outcomes of involving patient partners in the grant application process. The presentation is expected to be informative for researchers and organizations seeking to involve patient partners into their research efforts, particularly during the grant application stage.<\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_29529\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/kAcVQCD8vhQ?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-0a979ddb1ded19ad5 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_0a979ddb1ded19ad5\"><a aria-expanded=\"false\" aria-controls=\"0a979ddb1ded19ad5\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-2\" data-target=\"#0a979ddb1ded19ad5\" href=\"#0a979ddb1ded19ad5\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">13:05 - 13:15 | Q&amp;A<\/span><\/a><\/h4><\/div><div id=\"0a979ddb1ded19ad5\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_0a979ddb1ded19ad5\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Q&amp;A on integrating patients, families, and donors during funding development <\/strong>| 10 minutes<\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-13687\">Manuel Escoto<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-13689\">Dr. Marie-Chantal Fortin<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23646\">Paul Cormier<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22234\">Lindsay Thompson<\/a><\/li>\n<\/ul>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_95067\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/tzABkA7DHP8?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><div class=\"fusion-separator-border sep-double sep-solid\" style=\"--awb-height:20px;--awb-amount:20px;border-color:#e0dede;border-top-width:1px;border-bottom-width:1px;\"><\/div><\/div><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><strong>13:15 &#8211; 14:00 | MIDDAY BREAK<\/strong><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><div class=\"fusion-separator-border sep-double sep-solid\" style=\"--awb-height:20px;--awb-amount:20px;border-color:#e0dede;border-top-width:1px;border-bottom-width:1px;\"><\/div><\/div><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><span style=\"color: #5d91b4;\"><strong>Block 2 &#8211; Integrating Patient, Family and Donor Engagement in Research Execution<\/strong><\/span><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-3\"><div class=\"fusion-panel panel-default panel-40558d94d6811614d fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_40558d94d6811614d\"><a aria-expanded=\"false\" aria-controls=\"40558d94d6811614d\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-3\" data-target=\"#40558d94d6811614d\" href=\"#40558d94d6811614d\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">14:00 - 14:20 | Best practices when communicating research opportunities and integrating patient, family and donor partners to a project<\/span><\/a><\/h4><\/div><div id=\"40558d94d6811614d\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_40558d94d6811614d\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Best practices when communicating research opportunities and integrating patient, family and donor partners to a project <\/strong>| 15-minute presentation<\/h5>\n<h6><strong>Speaker:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-23468\">Dr. Sofia Ahmed<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22237\">Jennifer Kingdon<\/a><\/li>\n<\/ul>\n<h6><strong>Description<\/strong><\/h6>\n<p>The presentation will focus on the best practices for discussing research opportunities with patient, family, and donor partners and integrating them into the project. It will cover topics such as the importance of involving these partners in research, how to identify and recruit appropriate partners, strategies for effective communication and collaboration with partners, and how to ensure that diverse perspectives are represented in the project. Additionally, the presentation will touch upon the evaluation of partnerships in research and the benefits and challenges of involving patient, family, and donor partners in the project. This presentation is expected to be informative for researchers and organizations seeking to establish effective partnerships with patient, family, and donor partners in the field of research.<\/p>\n<p><strong>Get in touch with Sofia by email: <a href=\"mailto:Sofia.Ahmed@ahs.ca\">Sofia.Ahmed@ahs.ca<\/a> or on Twitter (<a href=\"https:\/\/twitter.com\/SofiaAhmedMD\">@SofiaAhmedMD<\/a>)!<\/strong><\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_52959\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/8wgpUHbT5j8?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-6a43baf38a9bfa70e fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_6a43baf38a9bfa70e\"><a aria-expanded=\"false\" aria-controls=\"6a43baf38a9bfa70e\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-3\" data-target=\"#6a43baf38a9bfa70e\" href=\"#6a43baf38a9bfa70e\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">14:20 - 14:35 | Inclusive Method for Developing Patient-Oriented Research Tools<\/span><\/a><\/h4><\/div><div id=\"6a43baf38a9bfa70e\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_6a43baf38a9bfa70e\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Inclusive Method for Developing Patient-Oriented Research Tools<\/strong> | 15-minute presentation<\/h5>\n<h6><strong>Speaker:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-23824\">Selina Allu<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22237\">Jennifer Kingdon<\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>The presentation will explore a novel approach to developing patient-oriented research tools that prioritize the needs and perspectives of patients. This inclusive method involves collaborating with patients and other stakeholders to identify research questions and meaningful outcome measures, and involving them in the design and testing of research tools. By prioritizing patient perspective in clinical research, this method aims to develop tools that are more relevant, accessible, and meaningful to patients, ultimately leading to better health outcomes. Attendees of this presentation can expect to gain insights into the process of developing patient-oriented research tools and the potential benefits of adopting an inclusive approach to clinical research.<\/p>\n<p><a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/20543581221074566\">Learn more here.<\/a><\/p>\n<p><strong>Get in touch with Selina by email: <a href=\"mailto:soallu@ucalgary.ca\">soallu@ucalgary.ca<\/a> or on Twitter (<a href=\"https:\/\/twitter.com\/SelinaAllu\">@SelinaAllu<\/a>)!<\/strong><\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_26586\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/NKRvlbdsfbw?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-f085b1434fb841726 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_f085b1434fb841726\"><a aria-expanded=\"false\" aria-controls=\"f085b1434fb841726\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-3\" data-target=\"#f085b1434fb841726\" href=\"#f085b1434fb841726\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">14:35 - 14:50 | Integrating Patient, Family and Donor Partners in Clinical Trials<\/span><\/a><\/h4><\/div><div id=\"f085b1434fb841726\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_f085b1434fb841726\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Integrating Patient, Family and Donor Partners in Clinical Trials<\/strong> | 15-minute presentation<\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-19093\">Dawn Richards<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23985\">Terry Hawrysh<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22237\">Jennifer Kingdon<\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>The presentation will delve into the importance of incorporating patients, family members and donors in the clinical trial process. During the presentation, attendees can expect to learn about the benefits and challenges of including these individuals on clinical trial teams, as well as strategies for effectively engaging and incorporating them onto the team. Practical tools will be provided to help clinical trial teams that wish to engage people with lived experience on their teams.<\/p>\n<p><strong>Get in touch with Dawn by email: <a class=\"c-link\" href=\"mailto:dawn.richards@ctontario.ca\" target=\"_blank\" rel=\"noopener noreferrer\" data-stringify-link=\"mailto:dawn.richards@ctontario.ca\" data-sk=\"tooltip_parent\" aria-haspopup=\"menu\" aria-expanded=\"false\">dawn.richards@ctontario.ca<\/a> or on Twitter (<a href=\"https:\/\/twitter.com\/TO_dpr\">@TO_dpr<\/a>)!<\/strong><\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_67567\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/DfJm8e2Kxds?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-c1e6a9c4636ea37dc fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_c1e6a9c4636ea37dc\"><a aria-expanded=\"false\" aria-controls=\"c1e6a9c4636ea37dc\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-3\" data-target=\"#c1e6a9c4636ea37dc\" href=\"#c1e6a9c4636ea37dc\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">14:50 - 15:10 | Panel discussion and Q&amp;A<\/span><\/a><\/h4><\/div><div id=\"c1e6a9c4636ea37dc\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_c1e6a9c4636ea37dc\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Panel discussion on integrating patient, family, and donor engagement in research execution<\/strong><\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-23468\">Dr. Sofia Ahmed<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23824\">Selina Allu<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-19093\">Dawn Richards<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23985\">Terry Hawrysh<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22237\">Jennifer Kingdon<\/a><\/li>\n<\/ul>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_55958\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/iKpiRjpVCcU?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-6 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-background-color:#abb562;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-5 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-three\"><h3 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:26.25;line-height:1.5;\"><span style=\"color: #000000;\"><strong>FRIDAY, JUNE 9, 2023<\/strong><\/span><\/h3><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-7 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1216.8px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-6 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-7 fusion-sep-none fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><span style=\"color: #5d91b4;\"><strong>Block 3 &#8211; Patients, Families and Donors in Knowledge Mobilization<\/strong><\/span><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-4\"><div class=\"fusion-panel panel-default panel-628c1047cf62b697e fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_628c1047cf62b697e\"><a aria-expanded=\"false\" aria-controls=\"628c1047cf62b697e\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-4\" data-target=\"#628c1047cf62b697e\" href=\"#628c1047cf62b697e\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:00 - 11:10 | Opening Remarks<\/span><\/a><\/h4><\/div><div id=\"628c1047cf62b697e\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_628c1047cf62b697e\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p>Opening remarks from Forum&#8217;s Co-Chairs<\/p>\n<ul>\n<li><a href=\"#\" class=\"spu-open-17846\">Leonard Hodder<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-16609\">Dr. Ruth Sapir-Pichhadze<\/a><\/li>\n<\/ul>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-8099e09dc91aca4d4 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_8099e09dc91aca4d4\"><a aria-expanded=\"false\" aria-controls=\"8099e09dc91aca4d4\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-4\" data-target=\"#8099e09dc91aca4d4\" href=\"#8099e09dc91aca4d4\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:10 - 11:30 | Engaging Patient, Family and Donor Partners in Arts-Based Research<\/span><\/a><\/h4><\/div><div id=\"8099e09dc91aca4d4\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_8099e09dc91aca4d4\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<p><strong>\u00a0Engaging Patient, Family and Donor Partners in Arts-Based Research | <\/strong>15-minutes presentation &amp; 5-minute Q&amp;A<\/p>\n<h6><strong>Speaker:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-23493\">Fraser Allan Best<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-13971\">Dr. Suze Berkhout<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22238\"><span class=\"NormalTextRun SCXW16428980 BCX0\">Chloe Wong-Mersereau<\/span><\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>The presentation aims to showcase the benefits of inclusive research methods that involve patients, families, and donors as active partners. The presentation will explore the ways in which arts-based research can be utilized to engage these partners in a meaningful way, and discuss the importance of including their perspectives and experiences in the research process. Attendees can expect to gain a deeper understanding of the benefits of engaging diverse stakeholders in research, and learn practical tips on how to incorporate arts-based approaches into their own research projects. Whether you are a researcher, healthcare professional, or simply interested in learning about innovative research methods, this presentation promises to be an engaging and informative discussion.<\/p>\n<p><strong>Get in touch with Fraser by email: <a title=\"mailto:fraserallanbest@gmail.com\" href=\"mailto:fraserallanbest@gmail.com\" target=\"_blank\" rel=\"noopener noreferrer\">fraserallanbest@gmail.com<\/a> or on Twitter (<a href=\"https:\/\/twitter.com\/FraserAllanBest\">@FraserAllanBest<\/a>)!<\/strong><\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_72990\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/cR52VNa_IYU?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><div class=\"fusion-panel panel-default panel-8e36c562fd209c826 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_8e36c562fd209c826\"><a aria-expanded=\"false\" aria-controls=\"8e36c562fd209c826\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-4\" data-target=\"#8e36c562fd209c826\" href=\"#8e36c562fd209c826\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">11:30 - 11:50 | Developing a modernized organ donation and transplantation data and reporting system: A lens on patient, family, donor engagement<\/span><\/a><\/h4><\/div><div id=\"8e36c562fd209c826\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_8e36c562fd209c826\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong>Developing a modernized organ donation and transplantation data and reporting system:\u200b A lens on patient, family, donor engagement<\/strong>\u00a0| 15-minute presentation &amp; 5-minute Q&amp;A<\/h5>\n<h6><strong>Speakers:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-23508\">Rachel McGihon<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23503\">Ryanna Bowling<\/a><\/li>\n<\/ul>\n<h6><strong>Moderator:<\/strong><\/h6>\n<ul>\n<li><a href=\"#\" class=\"spu-open-22238\"><span class=\"NormalTextRun SCXW16428980 BCX0\">Chloe Wong-Mersereau<\/span><\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>Learn more about how <a href=\"https:\/\/www.cihi.ca\/en\/pan-canadian-organ-donation-and-transplantation-odt-data-and-performance-reporting-system-project\">CIHI<\/a> and <a href=\"https:\/\/www.infoway-inforoute.ca\/en\/digital-health-initiatives\/organ-donation-transplantation-data-management\">Infoway<\/a> are developing a modernized ODT data and reporting system in Canada. This presentation will provide a project overview, including key milestones achieved to date across its five work streams. This presentation includes a lens on the project\u2019s patient, family, donor engagement and our approach to partnering with 4 PFD members to plan virtual focus groups to seek input on CIHI\u2019s ODT public reporting.<\/p>\n<p><strong>Get in touch with Ryanna and Rachel: <\/strong><strong><a title=\"E-mail odt@cihi.ca\" href=\"mailto:odt@cihi.ca\">odt@cihi.ca<\/a>.<\/strong><\/p>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_63424\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/8oPicLVST5U?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-title title fusion-title-8 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><strong>11:50 &#8211; 12:00 | BREAK<\/strong><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:20px;margin-bottom:20px;width:100%;\"><\/div><div class=\"fusion-title title fusion-title-9 fusion-sep-none fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-left fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><span style=\"color: #5d91b4;\"><strong>Block 4 &#8211; Patient, Family and Donor Research Priority Setting<\/strong><\/span><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><div class=\"fusion-separator-border sep-double sep-solid\" style=\"--awb-height:20px;--awb-amount:20px;border-color:#e0dede;border-top-width:1px;border-bottom-width:1px;\"><\/div><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-5\"><div class=\"fusion-panel panel-default panel-3eac96e065bf53b7c fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_3eac96e065bf53b7c\"><a aria-expanded=\"false\" aria-controls=\"3eac96e065bf53b7c\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-5\" data-target=\"#3eac96e065bf53b7c\" href=\"#3eac96e065bf53b7c\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">12:00 - 13:30 | Using Machine Learning to Enhance Equity and Access in Organ Donation and Transplantation Health Systems: Patient Perspectives<\/span><\/a><\/h4><\/div><div id=\"3eac96e065bf53b7c\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_3eac96e065bf53b7c\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong><span class=\"font8\">Patient, Family and Donor Research and Policy Priorities:<\/span><span class=\"font7\">\u00a0Using Machine Learning to Enhance Equity and Access in Organ Donation and Transplantation Health Systems: Patient Perspectives<\/span><\/strong><span class=\"font7\"><span class=\"acj\"> | 1.5 hour Workshop<\/span><\/span><\/h5>\n<ul>\n<li><a href=\"#\" class=\"spu-open-17198\">Dr. Mamatha Bhat<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-13971\">Dr. Suze Berkhout<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-23740\">Shilpa Raju<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-14164\">Sandra Holdsworth<\/a><\/li>\n<\/ul>\n<h6 class=\"s4\"><strong><span class=\"s5\">Session <\/span><span class=\"s5\">Objectives: <\/span><\/strong><\/h6>\n<ul>\n<li class=\"s10\"><span class=\"s5\">Engage with patient and family donor partners to<\/span> <span class=\"s5\">discuss <\/span><span class=\"s5\">p<\/span><span class=\"s5\">atient perspectives on ML deployment in a clinical setting<\/span><span class=\"s5\">.<\/span><\/li>\n<li class=\"s10\"><span class=\"s5\">Advance collaboration between investigators<\/span><span class=\"s5\">, patients<\/span><span class=\"s5\"> and family donor partners in donation and transplantation research<\/span><span class=\"s5\">.<\/span><\/li>\n<li class=\"s10\"><span class=\"s5\">I<\/span><span class=\"s5\">nform the development of <\/span><span class=\"s5\">research questions for <\/span><span class=\"s5\">a large grant applicatio<\/span><span class=\"s5\">n <\/span><span class=\"s5\">based on participant perspectives<\/span><span class=\"s5\">.<\/span><\/li>\n<li class=\"s10\"><span class=\"s5\">Identify patient and family donors willing to contribute to a grant application and subsequent project<\/span><span class=\"s5\">.<\/span><\/li>\n<\/ul>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_42248\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/-UdWoSCTLhc?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-title title fusion-title-10 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-five\"><h5 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;--fontSize:18.75;line-height:1.5;\"><strong>13:30 &#8211; 14:15 | MIDDAY BREAK<\/strong><\/h5><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:30px;margin-bottom:30px;width:100%;\"><div class=\"fusion-separator-border sep-double sep-solid\" style=\"--awb-height:20px;--awb-amount:20px;border-color:#e0dede;border-top-width:1px;border-bottom-width:1px;\"><\/div><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"align-self: center;margin-left: auto;margin-right: auto;margin-top:10px;margin-bottom:10px;width:100%;\"><\/div><div class=\"accordian fusion-accordian\" style=\"--awb-border-size:1px;--awb-icon-size:13px;--awb-content-font-size:1rem;--awb-icon-alignment:left;--awb-hover-color:#f9f9f9;--awb-border-color:#cccccc;--awb-background-color:#ffffff;--awb-divider-color:#e0dede;--awb-divider-hover-color:#e0dede;--awb-icon-color:#ffffff;--awb-title-color:#aa0e13;--awb-content-color:#7e8890;--awb-icon-box-color:#333333;--awb-toggle-hover-accent-color:#ab8b65;--awb-title-font-family:&quot;Open Sans&quot;;--awb-title-font-weight:regular;--awb-title-font-style:normal;--awb-title-font-size:18px;--awb-content-font-family:&quot;Open Sans&quot;;--awb-content-font-style:normal;--awb-content-font-weight:regular;\"><div class=\"panel-group fusion-toggle-icon-boxed\" id=\"accordion-22510-6\"><div class=\"fusion-panel panel-default panel-b18ff8ecaadfbad88 fusion-toggle-has-divider\"><div class=\"panel-heading\"><h4 class=\"panel-title toggle\" id=\"toggle_b18ff8ecaadfbad88\"><a aria-expanded=\"false\" aria-controls=\"b18ff8ecaadfbad88\" role=\"button\" data-toggle=\"collapse\" data-parent=\"#accordion-22510-6\" data-target=\"#b18ff8ecaadfbad88\" href=\"#b18ff8ecaadfbad88\"><span class=\"fusion-toggle-icon-wrapper\" aria-hidden=\"true\"><i class=\"fa-fusion-box active-icon awb-icon-minus\" aria-hidden=\"true\"><\/i><i class=\"fa-fusion-box inactive-icon awb-icon-plus\" aria-hidden=\"true\"><\/i><\/span><span class=\"fusion-toggle-heading\">14:15 - 15:45 | A National Approach to Prioritizing Emerging Issues in COVID-19 in Transplantation<\/span><\/a><\/h4><\/div><div id=\"b18ff8ecaadfbad88\" class=\"panel-collapse collapse \" aria-labelledby=\"toggle_b18ff8ecaadfbad88\"><div class=\"panel-body toggle-content fusion-clearfix\">\n<h5><strong><span class=\"font18\">Patient, Family and Donor Research and Policy Priorities:<\/span><span class=\"font17\"> A National Approach to Prioritizing Emerging Issues in COVID-19 in Transplantation<\/span><\/strong><span class=\"font17\"> | 1.5 hour Workshop<\/span><\/h5>\n<ul>\n<li><a href=\"#\" class=\"spu-open-14819\">Dr. Patricia Gongal<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-24165\">Dr. Margherita Cameranesi<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-13874\">Sherrie Logan<\/a><\/li>\n<li><a href=\"#\" class=\"spu-open-17849\">Rienk de Vries<\/a><\/li>\n<\/ul>\n<h6><strong>Description:<\/strong><\/h6>\n<p>Transplant recipients remain at higher risk of severe COVID-19 outcomes. For transplant recipients surviving COVID-19 and\/or experiencing the extreme stress associated with the pandemic, little is known about effective strategies to support recovery of quality of life. Studying these questions in Canada is challenging, given the pace of variant evolution and drug development, as well as regional variations in therapeutic practices and public health policies. How quickly the pandemic changes has made it difficult to deliver research results in time to still be relevant for clinical and policy decision making.<\/p>\n<p>To address this challenge, CDTRP has established a national, multi-disciplinary team and an agile, collaborative framework to address emerging research questions. With 12 participating Canadian transplant programs, we are creating a prospective registry of over 2500 transplant patients and their caregivers. A national data platform will capture outcomes from medical chart reviews, Patient-Reported Outcome Measures, and economic questionnaires to enable our research team to answer emerging questions on (1) therapeutic effectiveness and safety; (2) mental health, long-term well-being, and family impact; and (3) therapeutic cost-effectiveness and economic burden on the health care system and on families.<\/p>\n<p>This workshop is open to everyone in the national transplant community, including patients and family, health professionals, partner organizations, industry, and researchers from all disciplines. Together, we will develop consensus on the most pressing knowledge gaps related to therapeutics, mental health and well-being, and the economics of COVID-19 in transplant patients and families and plan the studies to address them.<\/p>\n<p><strong>Session Objectives:<\/strong><\/p>\n<ul>\n<li>Identify the priority questions that the community would like to be answered through the TREAT-COVID research project<\/li>\n<li>Gain every participant\u2019s perspective, including adult and pediatric transplant recipients, their families, caregivers and researchers<\/li>\n<li>Share progress on developing the project that we\u2019ve made over the last year<\/li>\n<li>Align the research goals of TREAT-COVID with the priorities of the community<\/li>\n<\/ul>\n<p><iframe  style=\"display: block; margin: 0px auto;\"  id=\"_ytid_56362\"  width=\"800\" height=\"450\"  data-origwidth=\"800\" data-origheight=\"450\" src=\"https:\/\/www.youtube-nocookie.com\/embed\/deBB29pMLLw?enablejsapi=1&#038;autoplay=0&#038;cc_load_policy=0&#038;cc_lang_pref=&#038;iv_load_policy=1&#038;loop=0&#038;modestbranding=0&#038;rel=1&#038;fs=1&#038;playsinline=0&#038;autohide=2&#038;theme=dark&#038;color=red&#038;controls=1&#038;\" class=\"__youtube_prefs__  epyt-is-override  no-lazyload\" title=\"YouTube player\"  allow=\"fullscreen; accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture\" allowfullscreen data-no-lazy=\"1\" data-skipgform_ajax_framebjll=\"\"><\/iframe><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":0,"parent":22220,"menu_order":27,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"footnotes":""},"class_list":["post-22510","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/pages\/22510"}],"collection":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/users\/6"}],"replies":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/comments?post=22510"}],"version-history":[{"count":63,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/pages\/22510\/revisions"}],"predecessor-version":[{"id":24313,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/pages\/22510\/revisions\/24313"}],"up":[{"embeddable":true,"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/pages\/22220"}],"wp:attachment":[{"href":"https:\/\/cdtrp.ca\/en\/wp-json\/wp\/v2\/media?parent=22510"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}